Adrenoleukodystrophy treatment in 13 Oncology clinics in France

This by far the best hospital that I know. The nurses are so professional and the smile on their faces as they do their work ,just tells you they love what they are doing. The doctors, are never pushy or in a hurry. I can go on and on. When the nurses heard that I was from Saint Martin and spoke English,they looked for a young nurse who was an apprentice and from Saint Martin, so she could speak to me and make me feel more comfortable. Turned out the young lady was my family. This hospital is tge best.

The 5 stars concerns only the people cited. They are what true healthcare workers should be , full of empathy, professionalism, humbleness. I hope you get all the credits you deserve. Thank you so much to the nurses and aide soignante of the service A1👨‍⚕️👩‍⚕️🧑‍⚕️🧑🏻‍⚕️👩🏿‍⚕️👨‍⚕️👨🏻‍⚕️👨🏼‍⚕️👩🏻‍⚕️👩🏼‍⚕️🧑🏽‍⚕️ le meilleur docteur François💥, Laurie++🤘 , Emanuelle 🙌,Anaïs👈, Claire💯, Mary-Lou🙏, Camille💫, Virginie👏, Margot✌️, Elodie🙌, Denver ❤, Brenda 👍,Laurent💪, Baptiste👐 Room 178

The best hopital ever

Good morning She was diagnosed with breast cancer in September 2023. Operation and radiotherapy Very good support, efficient, fast. Very competent, friendly, attentive, caring and empathetic staff. I thank Dr Butarelli and Dr Tallet and then all the medical and paramedical staff. Sincerely Ms. Delphine Gomez (Limousin).

The IPC is a benchmark for cancer. You can go there with your eyes closed. The doctors and surgeons are super responsive, competent, friendly, with whom you can communicate easily… The nursing staff are incredible too. Always attentive, the care is adapted and always done with precaution. The maintenance staff is competent, smiling,… The establishment is very well maintained. The only downside is that the windows let the cold in a little. We are grateful to be supported by these amazing teams!!

The cross and the banner to reach the switchboard have been going on for years, I am a medical secretary and when I call, I can stay 15/20 minutes waiting to finally have someone on the line. Whatever the time of day, no time is ideal for reaching them. The direct lines are still unavailable, it's the mission to call them!!!

Well visited a doctor for the first time was good different and got all my answers...

I have a RDV for the 9th of june at your clinque with the anesthesiste at 4:45 with Dr LECLERC please confirm

I have been tryi by to call the clinic for the whole week.I have a problem with my registration and I wanted to clear that up. After one week somebody answered… my french is not perfect and the staff on the phone couldn’t wait until I noted the correct phone number. They just hanged up and I still don’t have a number. It would have been hilarious if it wasn’t like a serious medical place.

This is a research hospital that serves thousands of women every year. I have been seen by a doctor within two days from my mammography and with what seems to be a fixed delay of three weeks between cosnultation-operation-reconsultation I am now on my way for radiotherapy. It is unbelievable that you get this level of expertise for free, in the states you would have to pay a fortune. The doctors are understandably buzy and will not spend too much time with you, however, there is psycologists, nurses, sophrology classes and all sorts of stuff that you have access to. It is a world class centre and we are all very lucky to have access to it in times of need.

My partner is in the hospital, he is French. I have come from Scotland to be with him. Is there any reasonable priced accommodation near the hospital. Thank you

Good place to work.

I was on vacation in Paris and was taken here with excruciating & sudden stomach pain. I had to have an emergency surgery to remove part of my large intestine due to a twist - or a “volvulous”. I was kept in the emergency waiting room overnight- part of the night in an empty hallway- with pain so severe that I almost fainted several times. I was certain I was going to die because I didn’t know if anyone would notice if I lost consciousness. The nurses and doctors I spoke with told me “we will come back with pain medication” but hours went by without seeing anyone again. Almost no one spoke English. I was terrified and traumatized. I would give this hospital 0 stars, HOWEVER. Once I got into surgery, the doctors were kind to me. I was crying quite a bit and they calmed me down and played music for me. The surgery went well, and I obviously survived without complications. I feel so grateful they caught the twist and operated on me within 16 hours of me being there. They did save my life. I don’t know who is reading this and if you are considering going here, but try to go to the American hospital if at all possible. I hope you get the care you need and deserve. Do not expect nurses there to care for you like nurses do in America.

Decent if you need urgent help. Extremely unhelpful staff in the registration desk, was told “you’re in france, speak french” after I asked them if they spoke English. The hospital felt very dirty and the waiting room was a chaos. Other than a long waiting time for non-priority cases, the care was acceptable.

I was just severely hurt by the staff member pictured here at emergency. I came in anxious and stressed about my condition. They were only meant to be checking my temperature in my ear but he did so forcibly it hurt me so bad, it gave me a panic attack. Then when I said something I was screamed at in French. I will be contacting a lawyer.

I live in the USA and was in Paris for vacation. I developed tachycardia on the flight to Paris, which was completely new for me. It lasted over 3 hours and the flight attendants summoned a medical doctor who told me to be checked in Paris. Necker urgent care was the closest facility to where we were staying. Upon walking into their urgent care area, I felt I was walking into a hospital from the 1940's. It was hot, dark and filthy. It looked like the old asbestos tile floors had not been swept or scrubbed in months (yes, I am assuming they were abestos tiles based on my experience with a similar floor in my home). The windows were filthy as well. Paint on the wood trim around the windows was chipping off. Just beyond the waiting area stood an old fashioned hospital screen on wheels. I had not seen one of those since the 1960's. After waiting for an hour, I lost confidence in what I would encounter with medical care and left. I hope this was a really bad example of a medical facility in Paris. I was told later I should have gone to the "American hospital" which no one had told me about beforehand. My taste of "free medical care" in France was not a good one. I hope my impression of their healthcare system was incorrect for the rest of the country. I do want to point out that I was able to enjoy my time in Paris and loved so many things about it. I am grateful for that experience. I am back home now and receiving good care for the condition I developed enroute to France.

I brought my daughter to this hospital early Sunday morning after she received food poisoning from a five star hotel. The staff was awful. They hire people who can barely speak French. Only the MDs were pros. After waiting for almost three hours I finally stopped a male MD and asked if he could see my daughter. Otherwise we would leave. He did and she was discharged shortly thereafter.

Worst hospital experience ever. Really increased the risk of delivering our son, unnecessarily. For weeks mid wives kept threatening there is a risk and we have to induce labor while all the data show that the infant and the mother are healthy. My wife was constantly stressed. When we ask what risk is there, mid wife just says “death of a baby”. Who uses this word in a hospital when there is no real risk? When my wife did start having a contraction, we went to the emergency service. They made us wait for 7 hours stating they are short staffed. There were actually quite a few staffs but they were checking their phones or chatting. We were disheartened but no one showed an interest, no one came and ask if we were doing ok. I repeat, it was an “emergency service”. After the seventh hour I asked when can we be taken care of. They said “we can’t, not enough bed, not enough staffs today. We will have to put you in another hospital”. Well what were they going to do if I hadn’t asked? Left us there unattended for another seven hours? They slowly started looking for other hospitals. Many were also full but finally there was a nice one available just outside Paris. Necker people said “ambulance will be here in 30 minutes”. Of course it took 90 minutes until we finally got to leave this horrible stupid hospital. Thanks to the nice second hospital, the baby was born in 12 hours after we had moved there, safe and sound. Maybe we just had a sequence of bad staffs at Necker. But for the entire time we commuted there and visited at the day of delivery, unfortunately we hardly met anyone there that cares or even shows a remote interest in patients. .

Allergology Department, sector 1 Bat 1k, lovely welcome 🙏 smiling, pleasant, respectful. Kind medical staff, take the time with the patient to explain well. Thank you 🙏 everything you need to be confident (or regain confidence in the medical profession...) and without stress... Some public hospitals in Lyon should take example...

Great hospital, top team in all maternity services: pathological pregnancy, cesarean section room, gyn.obstetrics, psychologist nursing staff!! Everything is perfect: care, kindness, professionalism, responsiveness, monitoring before childbirth and postpartum, advice, listening....A big thank you to the entire healthcare team, dr, midwives, caregivers and also the neonatology staff! Thanks to my dr Tsilanizara, dr Vachez (cesarean section) and to all the internal and attending doctors who took care of me Thank you Claire, René, the OR nurse (and all the SFs whose first names I don't have). Not forgetting the neonatal team who took care of my baby for 3 weeks! A strong emotional experience in a hospital on a human scale, I recommend

Go your way this hospital is to flee all specialties combined. Renowned for making NURSING STUDENTS MISERY, as if they had never been students before! I hope that the director of this establishment will act... one day... because it is at stake for the psychological health of students who end their studies or fall into depression because of these NURSES who think they are all powerful. Be aware that poor students go home in the evening crying and have to come back in spite of themselves the next morning with a lump in their stomach BECAUSE OF YOU, yes YOU. A good hearer

Do not go here if you don't speak French. And also if you don't like being made fun of by the staff. They're not nice folks.

Barely any staff spoke english, some were even annoyed when we mentioned we only spoke english. Waited for 3 hours in the emergency department only to be sent somewhere else. Don‘t bother!

We visited Emergency of this hospital. As we don’t speak French we were treated like prisoners. Hospital staff including doctors pretended like they don’t understand us. My wife came from a different hospital where she was initially admitted but only received very basic care because this one is accepted by our insurance. Despite having severe abdominal pain she was told that she will not be given any attention and she must go back to the original hospital. Doctor Jessica Franchitti was extremely rude to my wife and shouted to her to leave. Nobody ever treated us this way, especially in hospital. We had no choice but to leave and spend a day in a hotel hoping that the abdominal pain will get better. After we got back home my wife was immediately accepted to hospital to do hernia surgery.

Good doctor, good behavior. Satisfied patient.

I got to see two fabulous doctors, the first in emerg and the second in cardiology (who confirmed the original diagnosis). Both were extremely caring and knowledgeable. I felt in good hands. Minus a half star for the long wait to see the first doctor (but triage ekg was quick so I guess it wasn’t urgent). Minus another half star for the filthy, seatless public toilet for the waiting room but bonus point for the outstanding quality of the doctors.

You doctors who work in the Pitie Salpetriere hospital, bow your heads to the ground and beyond, for all those children's souls, whom you do not stop from their straight and fast path to earth. May all the joys with which you spoil yourselves, turn you into ashes, and let your empty souls shatter like the lives of the innocent, whom you leave daily prey to their suffering, evil and disease, without trying to save them, although their last hope it was with you. And we are not talking about terminal cases, but about people who can be saved easily, if you ONLY tried! World top 10 hospital: an advertisement for nothing!!! You shouldn't even be in the top 3 of a pitiful city, forgotten by the world! Great doctors who don't even see the patient, just sign to be discharged, and hide behind the reception, because you are busy. With what? Did you destroy the next man's life? How many people do you dust a day? Do you have a commission from cemeteries? Change all the staff! You made terrible recruiting mistakes! Give them difficult cases, without them knowing that they are being tested, and see what "doctors" you have! The rest, take their diplomas and useless documents and start sweeping the street, don't let them have the power to turn good people into dust!

A large hospital dating from the 70s, partly renovated, with many specialties and relatively correct care but very uncertain depending on the services as in many public assistance hospitals in general... We can therefore go there from heaven to hell, often with adorable and caring teams in intensive care or intensive care units and other totally overwhelmed teams with little regard for their patients because they are understaffed in many others services...

On the 3rd floor Orthopedic department: Caregivers, nurse, friendly staff overall 👍 Arthrodesis + laminectomy operation Dr Solène Prost service teacher Tropiano All the pain went well and was well treated. 5 days hospital Return home for 4 weeks to recover peacefully. Then start of physiotherapy rehabilitation.

I was taken to the Urgences here by ambulance and I have never had such an awful experience. The nurse who was looking after me was completely cold and uncaring despite the fact I has a blocked intestine and was not only I’m agony but kept blacking and vomiting. At one point when he saw me vomiting he said “don’t you think you are exaggerating a bit”! It took 6 hours before I had a scan and in that time I was left alone and given no blanket despite being soaked in sweat from the pain. When I finally went upstairs to the operating theatre, the experience was much better. I know this hospital has some great doctors and the surgeon who operated on me did an amazing job. My criticism is uniquely directed at the a&e “urgences” here which is just not good enough. All the staff were uncaring and cold and I felt scared and abandoned which is not what one should feel in hospital. Sorry, but a little more humanity would mean less stress to patients!

Today we visited the allergy department with our child. I really liked the service. The doctor spoke very nicely with my child. The inspection was good. We did an allergy test. Everything is fine and I'm very happy😊

My husband received wonderful care at A&E and intensive care after experiencing a heart attack on holiday last October 2022. Speedy treatment and attentive nursing while in CHU for two weeks prior to repatriation to the UK. Could not have had better treatment. A huge thank you to the doctors and staff who looked after him. We are very grateful.

My brother Christopher had the most excellent care in accident and emergency for a pulmonary embolism. I know he is very grateful to the drs and nurses that night. They were kind caring and amazingly speedy to diagnose and find a medication. Compared to the normal experience in the U.K. the French system that night was incredible and they also called him back for a check up in a week, again with an amazing dr so sympathetic, that would be two to three months in the U.K. The staff treated him with dignity and compassion. A massive thank you to all there

The Family Planning and IVG service is incredible, I recommend 100% Welcoming, smiling, attentive and open-minded care. I made an appointment for a contraceptive consultation and the installation was done the same day. I was also offered to do STI screenings directly and even given the opportunity to discuss it with the counselor/psychologist available in place. Highly recommended !

I think one of the best hospitals in terms of "gynecological emergencies", good care, less waiting and the staff is friendly. I met a gynecologist who took care of me really TOP. on the other hand the level 2 nurses, not all of them but the good ten that I had to meet who wanted them to explain my whole situation in front of everyone when it's not easy and they didn't care, I found their attitude quite a pity but really this hospital is TOP.

Very warm welcome at the nuclear medicine department, the nurses, doctors and receptionists are all very empathetic and smiling. What a pleasure to be cared for and taken care of like this when I imagine that it must not be easy for them every day. Perfect 👍

Excellent staff of internal medicine: after many months looking for a diagnosis, they were the first and only to listen, study my symptoms, and find the cause in a rare illness, before sending me to the appropriate structure in Cochin. The structure is modern and clean; 5 stars also to the chef: the good food made my weeks there more pleasant.

Saw the emergency room in the middle of the night, waited less than half an hour, it was quite fast, the doctors and nurses were very caring, and there was even breakfast, although it was simple.

My anesthesiologists were playing Joanne while putting me to sleep. Great and kind staff. Very positive experience.