Cerebral cavernous malformation (CCM) treatment in 6 Neurosurgery clinics in France

I was on vacation in Paris and was taken here with excruciating & sudden stomach pain. I had to have an emergency surgery to remove part of my large intestine due to a twist - or a “volvulous”. I was kept in the emergency waiting room overnight- part of the night in an empty hallway- with pain so severe that I almost fainted several times. I was certain I was going to die because I didn’t know if anyone would notice if I lost consciousness. The nurses and doctors I spoke with told me “we will come back with pain medication” but hours went by without seeing anyone again. Almost no one spoke English. I was terrified and traumatized. I would give this hospital 0 stars, HOWEVER. Once I got into surgery, the doctors were kind to me. I was crying quite a bit and they calmed me down and played music for me. The surgery went well, and I obviously survived without complications. I feel so grateful they caught the twist and operated on me within 16 hours of me being there. They did save my life. I don’t know who is reading this and if you are considering going here, but try to go to the American hospital if at all possible. I hope you get the care you need and deserve. Do not expect nurses there to care for you like nurses do in America.

Decent if you need urgent help. Extremely unhelpful staff in the registration desk, was told “you’re in france, speak french” after I asked them if they spoke English. The hospital felt very dirty and the waiting room was a chaos. Other than a long waiting time for non-priority cases, the care was acceptable.

I was just severely hurt by the staff member pictured here at emergency. I came in anxious and stressed about my condition. They were only meant to be checking my temperature in my ear but he did so forcibly it hurt me so bad, it gave me a panic attack. Then when I said something I was screamed at in French. I will be contacting a lawyer.

Good doctor, good behavior. Satisfied patient.

I got to see two fabulous doctors, the first in emerg and the second in cardiology (who confirmed the original diagnosis). Both were extremely caring and knowledgeable. I felt in good hands. Minus a half star for the long wait to see the first doctor (but triage ekg was quick so I guess it wasn’t urgent). Minus another half star for the filthy, seatless public toilet for the waiting room but bonus point for the outstanding quality of the doctors.

You doctors who work in the Pitie Salpetriere hospital, bow your heads to the ground and beyond, for all those children's souls, whom you do not stop from their straight and fast path to earth. May all the joys with which you spoil yourselves, turn you into ashes, and let your empty souls shatter like the lives of the innocent, whom you leave daily prey to their suffering, evil and disease, without trying to save them, although their last hope it was with you. And we are not talking about terminal cases, but about people who can be saved easily, if you ONLY tried! World top 10 hospital: an advertisement for nothing!!! You shouldn't even be in the top 3 of a pitiful city, forgotten by the world! Great doctors who don't even see the patient, just sign to be discharged, and hide behind the reception, because you are busy. With what? Did you destroy the next man's life? How many people do you dust a day? Do you have a commission from cemeteries? Change all the staff! You made terrible recruiting mistakes! Give them difficult cases, without them knowing that they are being tested, and see what "doctors" you have! The rest, take their diplomas and useless documents and start sweeping the street, don't let them have the power to turn good people into dust!

A large hospital dating from the 70s, partly renovated, with many specialties and relatively correct care but very uncertain depending on the services as in many public assistance hospitals in general... We can therefore go there from heaven to hell, often with adorable and caring teams in intensive care or intensive care units and other totally overwhelmed teams with little regard for their patients because they are understaffed in many others services...

On the 3rd floor Orthopedic department: Caregivers, nurse, friendly staff overall 👍 Arthrodesis + laminectomy operation Dr Solène Prost service teacher Tropiano All the pain went well and was well treated. 5 days hospital Return home for 4 weeks to recover peacefully. Then start of physiotherapy rehabilitation.

I was taken to the Urgences here by ambulance and I have never had such an awful experience. The nurse who was looking after me was completely cold and uncaring despite the fact I has a blocked intestine and was not only I’m agony but kept blacking and vomiting. At one point when he saw me vomiting he said “don’t you think you are exaggerating a bit”! It took 6 hours before I had a scan and in that time I was left alone and given no blanket despite being soaked in sweat from the pain. When I finally went upstairs to the operating theatre, the experience was much better. I know this hospital has some great doctors and the surgeon who operated on me did an amazing job. My criticism is uniquely directed at the a&e “urgences” here which is just not good enough. All the staff were uncaring and cold and I felt scared and abandoned which is not what one should feel in hospital. Sorry, but a little more humanity would mean less stress to patients!

Today we visited the allergy department with our child. I really liked the service. The doctor spoke very nicely with my child. The inspection was good. We did an allergy test. Everything is fine and I'm very happy😊

My husband received wonderful care at A&E and intensive care after experiencing a heart attack on holiday last October 2022. Speedy treatment and attentive nursing while in CHU for two weeks prior to repatriation to the UK. Could not have had better treatment. A huge thank you to the doctors and staff who looked after him. We are very grateful.

My brother Christopher had the most excellent care in accident and emergency for a pulmonary embolism. I know he is very grateful to the drs and nurses that night. They were kind caring and amazingly speedy to diagnose and find a medication. Compared to the normal experience in the U.K. the French system that night was incredible and they also called him back for a check up in a week, again with an amazing dr so sympathetic, that would be two to three months in the U.K. The staff treated him with dignity and compassion. A massive thank you to all there

Excellent staff of internal medicine: after many months looking for a diagnosis, they were the first and only to listen, study my symptoms, and find the cause in a rare illness, before sending me to the appropriate structure in Cochin. The structure is modern and clean; 5 stars also to the chef: the good food made my weeks there more pleasant.

Saw the emergency room in the middle of the night, waited less than half an hour, it was quite fast, the doctors and nurses were very caring, and there was even breakfast, although it was simple.

My anesthesiologists were playing Joanne while putting me to sleep. Great and kind staff. Very positive experience.

Meeting with Doctor G Lefebvre, I was received like a king, secretary, the doctor and the nurse who took my blood test very welcoming and very very simple I have never had such a welcome in a hospital from Valenciennois...It's good to see that there are people who love their job..Thank you..

Dated, small, unwelcoming rooms. Unpleasant staff, you have the impression of annoying them all the time. You have to beg for information or even get angry to get it. Little consideration of the patient, their pain, their dignity. In our time, this is unacceptable.

Followed since 2011 in Professor Pattou's department, the only hospital where I feel calm when I know that I have a hospital appointment even if it is currently for IVs and injections 🤣. A really great team. More than adorable nurses. Thank you very much for your kindness, your listening and your good hearts, you are all at the top 🥰🥰. All hospitals should have your patience and sympathy ❤️

Do not go here if you don't speak French. And also if you don't like being made fun of by the staff. They're not nice folks.

Barely any staff spoke english, some were even annoyed when we mentioned we only spoke english. Waited for 3 hours in the emergency department only to be sent somewhere else. Don‘t bother!

We visited Emergency of this hospital. As we don’t speak French we were treated like prisoners. Hospital staff including doctors pretended like they don’t understand us. My wife came from a different hospital where she was initially admitted but only received very basic care because this one is accepted by our insurance. Despite having severe abdominal pain she was told that she will not be given any attention and she must go back to the original hospital. Doctor Jessica Franchitti was extremely rude to my wife and shouted to her to leave. Nobody ever treated us this way, especially in hospital. We had no choice but to leave and spend a day in a hotel hoping that the abdominal pain will get better. After we got back home my wife was immediately accepted to hospital to do hernia surgery.

My doctors were helpful, skilled, professional and provided me a lot of information. After operation services and information is complete with high priority to the after operation services. The urgence for post opération patients was fast and of full service. The nurses when I came before the operation were too busy, they let me in, gave me my wrist tag and gave me 3 medicines but let me waited 2 hours and no one came back to me to update me that the operation will within 2 hours of waiting . I came at 8h50 and the actual operation is at 11h15, in between the waiting hours, no one has came to re assure me and update me of the schedule that made me nervous and worried for 2 hours. All nurses were so busy that morning and talks a lot to each other without double checking or just to give a quick short words to me for 2 hours in the waiting room before the Anesthesist picked me up. Thank you.

I was very well looked after for my first pregnancy. The team was superb, whether it was for the pregnancy follow-up, the day of the birth or the aftermath of the birth. For this alone I say bravo! But above all, I love the student nurses we met, who were full of compassion and kindness, much more than the nurses themselves. I don't give 5 stars because there is still a lot of room for improvement: - at all my pregnancy follow-up appointments, the wait always lasted more than an hour even though we were told to arrive 30 min before the appointment 🙄 - cold administrative reception - a lady at the analysis laboratory shouted at an old man who didn't understand the process (taking a ticket, waiting etc.) when he had just asked nicely what to do - we were scared when our baby was born, that he couldn't latch on, that he was going to starve to death, that we had to go to the osteopath...when a few days later our baby gained weight. We didn't understand the point of scaring us so much when in the end everything was going well.

I am impressed with the level of the hospital, attitude of medical and medical care. Grateful my surgery was handled here with great professionalism. Merci bien!

Excellent quality services and precision !

My first experience of having an angiogram- the staff were very kind and helpful and always with a smile. It makes the situation easier to handle ! Thank you to Doctor Rosencher and his wonderful team !

Disorganized and borderline incompetent: i was sent back and forth between the 2 locations and found in both places incompetent personnel. They are unable to keep to the scheduled appointment and on too of all, no doctor is available to issue the report of the examination. Just plain incompetence, avoid this place.

Operated in this clinic at the beginning of October, I learned that their administrative services are overwhelmed and that I have to wait on average 1.5 months to obtain the care billing slips to be reimbursed by the CPAM and the mutual insurance company. On the other hand, the clinic has no difficulty in requesting immediate payment of fees upon your admission. Good to know!

I have been trying to obtain an invoice since June, several calls telling me that I will receive the document by email, still nothing. Today I call and talk with someone who says she is checking my email address, but communication is cut off. I call back, and I've been waiting for an hour to get someone! It's scandalous ! Either we need to recruit people or stop coffee breaks!

The nursing staff at this clinic are not trained in the rules of respecting patient privacy. The nurses don't know how to place IVs, I found myself with veins explored. In short, no one from no one. Go elsewhere if you can.

Well visited a doctor for the first time was good different and got all my answers...

I have a RDV for the 9th of june at your clinque with the anesthesiste at 4:45 with Dr LECLERC please confirm

I have been tryi by to call the clinic for the whole week.I have a problem with my registration and I wanted to clear that up. After one week somebody answered… my french is not perfect and the staff on the phone couldn’t wait until I noted the correct phone number. They just hanged up and I still don’t have a number. It would have been hilarious if it wasn’t like a serious medical place.

Extremely disrespectful nurse, talking loud where I am able to hear what she is saying, and I can hear the patient or family member telling her to calm down. Instead she was more concerned about being right as opposed to provide empathy, care and concentrating on the wellbeing of the patient. What I witnessed in the lobby on Sunday November 26th, made me embarrassed and uncomfortable and hope that my family is not seen by this nurse. She is a bully and knows she can get away with it. Slamming the door on a patient’s family, makes me sick to my stomach. Not listening to a patient in distress, is lacking skills as a nurse. I will report this with the department of health in France.

We had a really positive experience with this hospital. As Australians visiting who don’t speak French, I needed a bit of a guarantee to find a hospital where they could speak English. We’d been to another hospital and unfortunately the treatment didn’t help my husbands condition. He was seen quite promptly by a Dr and then a Specialist at the American Hospital and was provided with medication which thankfully started assisting. I think we were in and out within a couple of hours and the cost was surprisingly low that there’s not really any need to claim it back on insurance. I’m glad we found this hospital as we may have needed to cut our holiday short and fly home. Big thank you to all the staff there.

Thanks to the American hospital we obtained a speedy appointment for my mother. Top geriatric specialist, friendly staff. Some reviewers should go to some - not all - public hospitals .Lovely service, charming receptionists. Our specialist was flexible with appointment time despite us being delayed by transport. It is a bit costly but doctors do take time. Some very specific scans were covered by the French Social Security scheme though. I don’t know all departments but twice we had premium service and care. And finally, my mother was diagnosed accurately and treatment was put in place. With very elderly and incapacitated patients free wheelchairs are available. Porters and valet service staff are helpful. This makes a huge difference on arrival by medical taxi. No hospital is perfect and one is bound to encounter below par staff. And yes, France has a general shortage of medical staff, private or public… Eric Levéel