Hurler syndrome treatment in 10 Oncology clinics in United Kingdom

I am currently undergoing chemotherapy as an inpatient at this hospital in the Ellis ward. I can only speak from my experience and I would say I am extremely happy with the care I am receiving. All staff from the reception desk to the oncologists are friendly and attentive. I believe I am in very good hands and feel all of my needs and fears are cared for. The staff all love what they do and nothing ever seems to too much trouble for them. I would recommend this hospital highly to anyone who unfortunately gets struck by this ba%tard disease. Keep up your hard work you are all amazing at what you do! ❤️ Charlotte Bensons team “ Massive Massive Thank you!!!”

Excellent theatre staff and informed follow up by doctors. Wilson Ward is however very noisy. Visitors are allowed to talk loudly and lights on until 11pm so difficult to sleep. Nursing staff (bar 1) is excellent. Food is good. Cleanliness is also very good. Well run. Helpful volunteers.

Having had very long and complex medical history I have come to thoroughly dislike doctors and hospitals, so it takes something quite extraordinary to garner 5* from me. The Marsden is definitely that extraordinary place with equally amazing care and fantastic team work throughout. For me care was co-ordinated and faultless. Also the food wasn't bad, which is a small miracle in itself!

An amazing hospital with specialists that keep things simple and have a great bedside manner. Dr Ramani put my mind at ease and was extremely professional. Thanks for making a huge difference.

I can't thank all the staff at The Christie enough. I had a minor procedure with them and during my time there felt truly cared for and supported. I was kept up to date every step of the way, my doctor and the nurses all listened to me, answered questions and I'll be forever grateful for their help!

I cannot praise The Christie too much. Although I'd rather not have to visit there, the amazing team make it so much easier and I actually look forward to seeing them. They are efficient, caring, compassionate, honest and help me so much. If I want to talk, someone is always available, my specialist nurse always gets back to me if I have an issue or need results. Thank you all, you are wonderful, genuine people.

I wanted to take a moment to express my heartfelt gratitude for the wonderful reception (Fiona) she provided at Harbour Hospital professionalism, warmth, and attention to detail made a significant impact and contributed greatly to my experience at the Hospital Here ability to manage everything so seamlessly and with a smile was truly appreciated. It's people like Fiona who make Harbour Hospital a place of excellence, but also a welcoming and supportive community. Thank you Ihab Elsamannoudi

I wouldn’t want to go anywhere else. From registration to leaving everyone was amazing. They always are. Mr. Hilton is so nice, as is Dr. Wee. My nurse was Alison, I think. All the staff are just so nice and happy to chat and have a laugh. I hope I don’t have to go back, but if I do I know I will be looked after and happy.😘🥂

All the staff were excellent. They were friendly and incredibly supportive. From the consultant, Mr Harvey and anaesthetist, Mr Snow to all the nursing staff - particularly Karina, Margaret and Sally - there were many others, Vanessa, Abby and Bernard who all took such care. I felt very looked after. Thank you.

I used the hospital to have the services of Mr Afifi as I was due a hysterectomy due to endometriosis. Katie, his PA is excellent and always on hand to help and support. However, the booking staff were terrible with communication. I received wrong information numerous times prior to my pre op and operation and found myself making daily calls to resolve the matter. I made a complaint to the PA to the Surgeon and still nothing improved. Even on the day of my pre assessment I didn't have all the right information - wrong time and no address. When in hospital the majority of the staff were good however the communication between the nurses was not good and it was clear, as they messages regarding my requests were not been answered. Each nurse told different story for medication and recovery and it took one Healthcare assistant (Marty) to come in and get things under control and a proper plan in place. I only had one night approved by the insurance company and I ended up needing 2 nights due to not feeling well after the surgery. The staff were too focused on getting me out to make space for another patient that I was furious and stressed. I assured the staff that I was happy to pay the extra night and so was my insurance company. I was spoken to by at least 5 staff members to try and move me out when clearly I didn't have the confidence to leave the hospital because of my condition. We normally use another private hospital in London and I can assure that from now on we won't be using Circle Health Group again. The communication overall was not acceptable, the staff on the ward show they are overworked and tired and in turn pass this onto the patients. They are more focused on treating each patient as a business and not as a patient. Overall I was not happy with my experience and going forward will not use your business again.

I can’t fault the care and kindness of everyone who was involved in my surgery and on the ward afterwards. I had surgery two days ago and my surgeon was brilliant, he talked through everything with me and came to personally visit me on the ward twice to check in on me and answer any questions I had. I was admitted to Dudley ward and every single one of the nursing team that were on the ward were fantastic, they looked after me and are so kind and caring. I would love to thank each of them individually as I feel they went above and beyond. I would highly recommend my surgeon and the hospital to anyone who asked me where I had it done.

Everything was fantastic, in particular the nursing staff- Camilla, Marty and Mandy were fantastic. Everyone was friendly and kind and tried to make my stay as pleasant as possible. The food selection was great (even for fussy vegans like me!) I had a few issues after my surgery but the nursing team were brilliant and really went the extra mile to make sure I was comfortable and knew what to expect.

I would like to give a massive thank you to Sarah Hoyle, Mr Berber, my whole experience at the Park hospital was fantastic, every step of the way from being contacted by Sarah, admissions, Mr Berber and his team, right the way through to the caterers and porters. I have to say I was made very welcome and treated with respect

Due to the unfortunate pressure on the NHS it's necessary to have to fall back on private care on occasions. My Mum was in this situation and went here for a joint replacement operation. Impressed by respectful and professional manner in which she was cared for. Building interior itself is modern and completely spotless.

I was looked after extremely well at The Park Hospital, and treated with respect at all times. My room was very comfortable and the staff were always on hand for any needs I had, not to mention a joke or two! The food was lovely, a good choice of menu and always beautifully cooked and presented. So my thanks to all of the staff who looked after me, with special appreciation to Mr Henley and his team who were outstanding.

The attention I received from reception to the consultant was first class. Timing was excellent and the whole experience was efficient and comfortable. This was reassuring as I was a little concerned about my investigations. I cannot praise the hospital highly enough on this occasion.

A big thank you to everyone involved in my care at the London Bridge Hospital. Cannot recommend the hospital enough! Mr. Ember and Tessa are always easy to talk to. Despite his busy schedule, I never felt that Mr. Ember was rushing in our appointments. So very patient in explaining every thing which made me feel 100% confident in him. The nurses were brilliant! RGN Bambhi (Abhi) Q. went above and beyond to make sure I was comfortable during my admission. She has already finished her night shift when I arrived but she still went to my room, answered all my questions and made feel comfortable. She also made sure to check on me after discharge. RGN CJ looked after me, her bright personality is truly refreshing but stayed professional the whole time. She made sure I was well looked after before during and after my procedure. Additionally, RGNs Dana and Gladys, were also exceptionally kind and knowledgeable. The food was impressive! Catering staff were always so polite. Was kinda bummed that coffee was instant coffee(not a big deal tho). Overall, I am extremely grateful to the whole London Bridge team!

I was a day patient for a knee surgery. The hospital staff is absolutely fantastic and friendly, they are always there to help you and to answer questions. The food was good beside I was not able to eat it all (i had anesthetic side effects) and the facilities were immaculate! Thanks for making it such as smooth process.

I had there fundraisers opening my door and when i confronted him, he said oh i thought you wont be able to hear me. Since when did they have the right to open my house door? eastlondon area. Please advise your staff not to open peoples porch doors or any door if they dont answer the door.

Will you please remind your door to door salespeople whom I guess are students operating in Ripley Derbyshire that it is against Charity Commission regulations to pressurise people into signing up to donating. They have been targeting elderly people twice in two days now. By using high pressure tactics like this you are tarnishing the good works this Hospital does.

We’ve been harassed by GOSH representatives on numerous occasions now. They knocked our door THREE times in a single day. Once at midday when no-one was home, the second just 10 minutes after I arrived home from work (obviously stalking me), and the third at 8:30pm!! I’ve previously expressed my disinterest on donating to the charity, yet they continue to return to our property. If a property could be put on a sort of TPS these guys would be in some serious trouble. After speaking to neighbours, they had nothing good to say either (we have a community Facebook Group), some even said that the representatives were extremely rude and overly personal - one lady even had to leave her house because she didn’t feel safe! Times are hard enough and people certainly aren’t going to donate money to a charity that is being represented by such rude individuals. We’ve offered to give them some spare change as a donation but they insist on bank details. You can jog on if you think I’m going to be giving my bank details to some stranger at my doorstep. I’ll happily donate to charity but it will be on my own terms - not with harassment and peer pressure at my door. I wrote this review after GOSH decided to ignore my email of complaint. We’ve now opted to purchase a ‘no cold callers’ plaque to prevent them from visiting in future. If they choose not to comply and continue to harass us, I will be taking this further; perhaps even deciding as a community to set up a ‘no cold calling zone’ with the Local Authority if need be.

Not fit for purpose. A children’s hospital? children should bring the priority right? well i been waiting for my 2 year old nephew 8+ hours, still waiting. They’re just fiddling around back there, no sense of urgency, just want to finish their shift and go home. horrible really. at the heart of the city centre. deplorable.

Will never be able to thank Birmingham Children’s Hospital enough for all they’ve done for my little boy and family. Ward 10 nurses and staff made the hardest time of my life that bit easier and brighter 🥰

Terrible. FXXXING terrible. I came with my son who was struggling to breathe at 8pm. My son is 9 months. First they made me wait 3 hours in the main area when I told them he is not breathing properly. Then they moved me to another section and made me wait another hour. When I asked how long they kept telling me they don’t know. If they don’t know who does???!! They just sitting there talking about life rather than looking at my son. 12:30 decided to leave and go to a private hospital. Never again.

Horrible experience… i arrived at midnight in an ambulance with my 1 year old and i am sitting in the waiting room at 4:29 writing this review … they told me to wait for 5 hours for a doctor …. My son is really sick and cant do anything about it and the people that are supposed to help are just being awful to me for asking if they could check on him

Excellent care for our two year old, every staff member made us feel at ease, looked after us well. car parking (multi storey) was simple, drive in, no coins or tokens to mess around with, well laid out hospital and clean, far better than our local hospital (RPH)

Every single staff member I have met in this hospital, from security to cleaner reception to nurses to physicians, is a genuine nice person. They are willing to help you without hesitating. The communication between units is excellent.

My name is Minal and I was hospitalised at UCLH from 21st October 2023 until 28th October 2023 with a nasty infection. I was put on sepsis protocol and I was eventually diagnosed with abscesses. The care and treatment I received from the time I arrived at A&E until I was discharged was exceptional. I was in such a bad state that I cannot remember all the names of the staff who looked after me, but I have to mention the nurse in A&E majors, Davinia Sabater Guijarro, as she took care of me with a lot of kindness and compassion. She was brilliant! Eventually, I was admitted to medical ward only briefly and then gynaecology ward. Nurse Reena from the medical ward was very kind, although I was only there for a very short time. Some of the nurses on gynaecology ward who looked after me were Nurse Erlou, Nurse Sidikat, Nurse Jordine, Nurse Kawser, Nurse Olu, Nurse Nishma, Nurse Bushirah, Nurse Antonio, HCA Maureen, Ward physio Bethany and many other nurses and healthcare assistants to whom I am very grateful to for the care and support they gave me whilst I was on that ward. The Gynaecology team led by Dr Naaila Aslam were fantastic and I feel that I am here and alive today because of them. My local hospital had sent me away with Trimethoprim and a wrong diagnosis just the previous day. Had I not gone to UCLH that Saturday evening, I wouldn't have made it, as my CRP was 400 and I was septic. Thank you to Dr Aslam and her team including Dr De Braud, Dr Tatiana, Dr Neha, Dr Julie, Dr Omar, Dr Hannah, Dr Alison and everyone in that team. They saved my life! When I had my procedure to drain the abscess, the nurses were so supportive including nurse Kit and nurse Emma. There were other nurses in that room too, but I don't recall all the names. All were wonderful. I would not have got through that procedure without their words of support and encouragement, in particular Nurse Kit and Nurse Emma. I hope the above mentioned staff and anyone who looked after me reads this review. I am forever grateful to them. UPDATE (5th December 2023): I spent a further two nights at UCH when the infection returned. Lots of wonderful nurses and healthcare assistants in A&E majors and same day emergency care (thank you Dr Maria Marouli and Nurse Jennifer). Another positive experience on gynae ward. Nurses Warda, Queen, Alena and Clare were all very kind, attentive and extremely competent.

There were so many patients in the A&E, i suffered with severe pain with kidney stone sym on Wednesday night 08/12/2023,staffs are well trained and doctors and nurses are very helpful. I had my CT scan and blood test results with in two hours. specially thanks to Dr. Bolloju and Dr. Galica, they are such nice doctors showed their professionalism, kindness, caring and excellent management skills.

Amazing service was feeling really unwell seen unbelievably quickly. The doctors and nurses were great very sympathetic and understanding. I attended the emergency day care Dr Johnny and dr harder also his staff were great provided a really immaculate service. The hospital is clean and well kept thank you all