Cerebral cavernous malformation (CCM) treatment in 6 Neurosurgery clinics in France

A large hospital dating from the 70s, partly renovated, with many specialties and relatively correct care but very uncertain depending on the services as in many public assistance hospitals in general... We can therefore go there from heaven to hell, often with adorable and caring teams in intensive care or intensive care units and other totally overwhelmed teams with little regard for their patients because they are understaffed in many others services...

On the 3rd floor Orthopedic department: Caregivers, nurse, friendly staff overall 👍 Arthrodesis + laminectomy operation Dr Solène Prost service teacher Tropiano All the pain went well and was well treated. 5 days hospital Return home for 4 weeks to recover peacefully. Then start of physiotherapy rehabilitation.

I was taken to the Urgences here by ambulance and I have never had such an awful experience. The nurse who was looking after me was completely cold and uncaring despite the fact I has a blocked intestine and was not only I’m agony but kept blacking and vomiting. At one point when he saw me vomiting he said “don’t you think you are exaggerating a bit”! It took 6 hours before I had a scan and in that time I was left alone and given no blanket despite being soaked in sweat from the pain. When I finally went upstairs to the operating theatre, the experience was much better. I know this hospital has some great doctors and the surgeon who operated on me did an amazing job. My criticism is uniquely directed at the a&e “urgences” here which is just not good enough. All the staff were uncaring and cold and I felt scared and abandoned which is not what one should feel in hospital. Sorry, but a little more humanity would mean less stress to patients!

Today we visited the allergy department with our child. I really liked the service. The doctor spoke very nicely with my child. The inspection was good. We did an allergy test. Everything is fine and I'm very happy😊

My husband received wonderful care at A&E and intensive care after experiencing a heart attack on holiday last October 2022. Speedy treatment and attentive nursing while in CHU for two weeks prior to repatriation to the UK. Could not have had better treatment. A huge thank you to the doctors and staff who looked after him. We are very grateful.

My brother Christopher had the most excellent care in accident and emergency for a pulmonary embolism. I know he is very grateful to the drs and nurses that night. They were kind caring and amazingly speedy to diagnose and find a medication. Compared to the normal experience in the U.K. the French system that night was incredible and they also called him back for a check up in a week, again with an amazing dr so sympathetic, that would be two to three months in the U.K. The staff treated him with dignity and compassion. A massive thank you to all there

Excellent staff of internal medicine: after many months looking for a diagnosis, they were the first and only to listen, study my symptoms, and find the cause in a rare illness, before sending me to the appropriate structure in Cochin. The structure is modern and clean; 5 stars also to the chef: the good food made my weeks there more pleasant.

Saw the emergency room in the middle of the night, waited less than half an hour, it was quite fast, the doctors and nurses were very caring, and there was even breakfast, although it was simple.

My anesthesiologists were playing Joanne while putting me to sleep. Great and kind staff. Very positive experience.

I was on vacation in Paris and was taken here with excruciating & sudden stomach pain. I had to have an emergency surgery to remove part of my large intestine due to a twist - or a “volvulous”. I was kept in the emergency waiting room overnight- part of the night in an empty hallway- with pain so severe that I almost fainted several times. I was certain I was going to die because I didn’t know if anyone would notice if I lost consciousness. The nurses and doctors I spoke with told me “we will come back with pain medication” but hours went by without seeing anyone again. Almost no one spoke English. I was terrified and traumatized. I would give this hospital 0 stars, HOWEVER. Once I got into surgery, the doctors were kind to me. I was crying quite a bit and they calmed me down and played music for me. The surgery went well, and I obviously survived without complications. I feel so grateful they caught the twist and operated on me within 16 hours of me being there. They did save my life. I don’t know who is reading this and if you are considering going here, but try to go to the American hospital if at all possible. I hope you get the care you need and deserve. Do not expect nurses there to care for you like nurses do in America.

Decent if you need urgent help. Extremely unhelpful staff in the registration desk, was told “you’re in france, speak french” after I asked them if they spoke English. The hospital felt very dirty and the waiting room was a chaos. Other than a long waiting time for non-priority cases, the care was acceptable.

I was just severely hurt by the staff member pictured here at emergency. I came in anxious and stressed about my condition. They were only meant to be checking my temperature in my ear but he did so forcibly it hurt me so bad, it gave me a panic attack. Then when I said something I was screamed at in French. I will be contacting a lawyer.

Good doctor, good behavior. Satisfied patient.

I got to see two fabulous doctors, the first in emerg and the second in cardiology (who confirmed the original diagnosis). Both were extremely caring and knowledgeable. I felt in good hands. Minus a half star for the long wait to see the first doctor (but triage ekg was quick so I guess it wasn’t urgent). Minus another half star for the filthy, seatless public toilet for the waiting room but bonus point for the outstanding quality of the doctors.

You doctors who work in the Pitie Salpetriere hospital, bow your heads to the ground and beyond, for all those children's souls, whom you do not stop from their straight and fast path to earth. May all the joys with which you spoil yourselves, turn you into ashes, and let your empty souls shatter like the lives of the innocent, whom you leave daily prey to their suffering, evil and disease, without trying to save them, although their last hope it was with you. And we are not talking about terminal cases, but about people who can be saved easily, if you ONLY tried! World top 10 hospital: an advertisement for nothing!!! You shouldn't even be in the top 3 of a pitiful city, forgotten by the world! Great doctors who don't even see the patient, just sign to be discharged, and hide behind the reception, because you are busy. With what? Did you destroy the next man's life? How many people do you dust a day? Do you have a commission from cemeteries? Change all the staff! You made terrible recruiting mistakes! Give them difficult cases, without them knowing that they are being tested, and see what "doctors" you have! The rest, take their diplomas and useless documents and start sweeping the street, don't let them have the power to turn good people into dust!

Meeting with Doctor G Lefebvre, I was received like a king, secretary, the doctor and the nurse who took my blood test very welcoming and very very simple I have never had such a welcome in a hospital from Valenciennois...It's good to see that there are people who love their job..Thank you..

Dated, small, unwelcoming rooms. Unpleasant staff, you have the impression of annoying them all the time. You have to beg for information or even get angry to get it. Little consideration of the patient, their pain, their dignity. In our time, this is unacceptable.

Followed since 2011 in Professor Pattou's department, the only hospital where I feel calm when I know that I have a hospital appointment even if it is currently for IVs and injections 🤣. A really great team. More than adorable nurses. Thank you very much for your kindness, your listening and your good hearts, you are all at the top 🥰🥰. All hospitals should have your patience and sympathy ❤️

Do not go here if you don't speak French. And also if you don't like being made fun of by the staff. They're not nice folks.

Barely any staff spoke english, some were even annoyed when we mentioned we only spoke english. Waited for 3 hours in the emergency department only to be sent somewhere else. Don‘t bother!

We visited Emergency of this hospital. As we don’t speak French we were treated like prisoners. Hospital staff including doctors pretended like they don’t understand us. My wife came from a different hospital where she was initially admitted but only received very basic care because this one is accepted by our insurance. Despite having severe abdominal pain she was told that she will not be given any attention and she must go back to the original hospital. Doctor Jessica Franchitti was extremely rude to my wife and shouted to her to leave. Nobody ever treated us this way, especially in hospital. We had no choice but to leave and spend a day in a hotel hoping that the abdominal pain will get better. After we got back home my wife was immediately accepted to hospital to do hernia surgery.

Extremely negative experience, after having traveled more than 100km and 3 weeks of waiting for an appointment scheduled for December 4 at 1:20 p.m., for possible breast cancer, I learned on the spot that it had been brought forward to 9 a.m. without being informed . Despite the advance of almost 30 minutes for each patient, the two doctors present categorically refused, without even coming or apologizing to carry out the planned examinations. Probably a golf course or a houndstooth hunt planned for 4 p.m.??!!!. No consideration or humanity on their part. So I stay with my anxieties and my doubts until a possible another appointment.

Hospitalized for 5 days for an operation, everyone was charming, caring, very caring. Thank you all

Very nice staff the doctor and teacher very attentive put us in confidence little disappointment for the toilets of the reception not clean and only one in service

I live in the USA and was in Paris for vacation. I developed tachycardia on the flight to Paris, which was completely new for me. It lasted over 3 hours and the flight attendants summoned a medical doctor who told me to be checked in Paris. Necker urgent care was the closest facility to where we were staying. Upon walking into their urgent care area, I felt I was walking into a hospital from the 1940's. It was hot, dark and filthy. It looked like the old asbestos tile floors had not been swept or scrubbed in months (yes, I am assuming they were abestos tiles based on my experience with a similar floor in my home). The windows were filthy as well. Paint on the wood trim around the windows was chipping off. Just beyond the waiting area stood an old fashioned hospital screen on wheels. I had not seen one of those since the 1960's. After waiting for an hour, I lost confidence in what I would encounter with medical care and left. I hope this was a really bad example of a medical facility in Paris. I was told later I should have gone to the "American hospital" which no one had told me about beforehand. My taste of "free medical care" in France was not a good one. I hope my impression of their healthcare system was incorrect for the rest of the country. I do want to point out that I was able to enjoy my time in Paris and loved so many things about it. I am grateful for that experience. I am back home now and receiving good care for the condition I developed enroute to France.

I brought my daughter to this hospital early Sunday morning after she received food poisoning from a five star hotel. The staff was awful. They hire people who can barely speak French. Only the MDs were pros. After waiting for almost three hours I finally stopped a male MD and asked if he could see my daughter. Otherwise we would leave. He did and she was discharged shortly thereafter.

Worst hospital experience ever. Really increased the risk of delivering our son, unnecessarily. For weeks mid wives kept threatening there is a risk and we have to induce labor while all the data show that the infant and the mother are healthy. My wife was constantly stressed. When we ask what risk is there, mid wife just says “death of a baby”. Who uses this word in a hospital when there is no real risk? When my wife did start having a contraction, we went to the emergency service. They made us wait for 7 hours stating they are short staffed. There were actually quite a few staffs but they were checking their phones or chatting. We were disheartened but no one showed an interest, no one came and ask if we were doing ok. I repeat, it was an “emergency service”. After the seventh hour I asked when can we be taken care of. They said “we can’t, not enough bed, not enough staffs today. We will have to put you in another hospital”. Well what were they going to do if I hadn’t asked? Left us there unattended for another seven hours? They slowly started looking for other hospitals. Many were also full but finally there was a nice one available just outside Paris. Necker people said “ambulance will be here in 30 minutes”. Of course it took 90 minutes until we finally got to leave this horrible stupid hospital. Thanks to the nice second hospital, the baby was born in 12 hours after we had moved there, safe and sound. Maybe we just had a sequence of bad staffs at Necker. But for the entire time we commuted there and visited at the day of delivery, unfortunately we hardly met anyone there that cares or even shows a remote interest in patients. .

I had an injury in my head. I went there and you have to know French. People that helped me did not speak nor English neither Spanish. But the attention was good

ZERO. VERY BAD EXPERIENCE WITH THE ADMISSION SYSTEM. I JUST WAIT FOR 9 HOURS TO GET ADMISSION . PROCESS IS VERY SLOW AND DISRESPECTFUL. NURSES ARE THE WORST IN THIS WORLD. THEY TREAT YOU LIKE DOG . NURSES BEHAVE VERY BADLY IN EVERY INSTANCE. DURING CHANGING OF ROOM THEY DONOT GIVE ME A MINUTE TO PREARE MYSELF FOR CHANGING. THEY DONOT TAKE CARE AND ARE VERY RUDE. THEY JUST DONOT CARE. NEVER GO TO THIS PRIVATE HOSPITAL. WORST EXPERIENCE. I REQUEST ALL VIEWERS TO CONTACT MINISTRY OF HEALTH AND HUMAN RIGHTS COMMISSION TO FORWARD MY MESSAGE. WE HUMAN BEINGS MUST HEALP EACH OTHER TO CHANGE THE SYSTEM.

What a fantastic ER and 1st floor ICU staff. We cannot thank them enough for the care they provided to their patients and address the patients' family's concern. My 80 years old dad that was brought to the ER from another facility in a critical condition and Dr. Mole from the ER provided great care and took the time to call us to give updates. When my dad was shift to the ICU under Dr. Tiu's care she was very easy to talk to. She called us daily to report on my dad's health status. We are so grateful to the doctors, nurses for the amazing care they provide their patients especially given the pandemic. They listen to the families concerns, suggestions when we advocate for our dear ones. They work as a team with the family to help the patient. Thank you for your hard work, dedication and care.

New to the institute, I am reassured to be treated there. People who listen, full of gentleness and kindness. Returning to these places is quite anxiety-inducing, but when we see how we are welcomed there, we take these moments with more lightness.

The Bergonié Institute is truly at the top on all levels. A wonderful organization, which allowed me not to stress about making appointments. These are grouped together on the same day given the distance from my home. Every department I have been to I have met caring, smiling, gentle and professional staff and let's not forget to say very competent. Top anesthetist and surgeon, thank you.

What to say ? Extraordinary, attentive and competent... just yesterday, I was there; my surgeon, my nurses are more than "on top" of gentleness, smile and everything... if you have serious health concerns, this is the place... if my surgeon retires at the end of this year, I will think of her very much because she is sublime and she deserves "a little" rest - What skill! Thanks to them all.

Living in the Paris region, in March 2023 I performed a colonoscopy at the Clinique Ste Marie (Cergy) revealing the existence of a non-cancerous polyp in the rectum. In April 2023, I contacted Doctor Mourregot at the ICM for a second opinion. The ICM then diagnosed me with stage 3 cancer. Everything is accelerating! Chemotherapy treatment (3 months) accompanied by chemoradiotherapy (1 month) are implemented. To date, I would like to share my experience with anyone who has questions about the care provided by the ICM. I was very well cared for, very well surrounded by a team of competent, professional, thoughtful, attentive and above all attentive doctors, nurses and healthcare staff. I responded very well to the treatments offered. I have complete confidence in this healthcare facility. Good luck to all sick readers and your loved ones but don't hesitate to seek treatment in this establishment! Olivier LALEU

Follow-up and surgery in the context of cancer. Serious and respectful institute. The oncologists, dct fabro and dct quesada, referred me to the surgeon, prof. Colombo, a human professional and very attentive. Intensive care department with little care, same kindness once in the surgery department, apart from the head of department who should be avoided, and who could benefit from training in empathy. Despite this, I remain satisfied and grateful to the institute which has my full confidence.

I was followed by the ICM. I have never seen anywhere else the interest they show in their patient. Everything is coordinated planned. The staff is extremely empathetic, kind and attentive.