Cerebral cavernous malformation (CCM) treatment in 17 Neurosurgery clinics in Russia

Many thanks for the kind heart and golden hands of the MFC headed by Sufiyanov Albert Akramovich, NHO #3 Nabiev David Nodarovich (they performed a complex multi-hour operation), all the doctors, nurses, nannies, kitchen workers. Your motto is life in a clear mind! And on my own behalf I will continue it - and without pain!!! Magnitogorsk, Natalia Vitalievna Baturina.

Good afternoon With deepest gratitude and gratitude I leave my review of the Federal Center for Neurosurgery (Tyumen). FCN in Tyumen is a modern medical institution with the best equipment and world-class doctors with golden hands! Many thanks and low bow to Professor Albert Akramovich Sufianov and his team for the most complex operation they performed on me (08/14/2023)! Heartfelt thanks to the entire team of the 4th neurosurgical department (neuro-oncology) for their sensitive attitude and care, for their attention, patience, and professionalism! Health and happiness to all of you, your family and friends! Thanks for your hard work! Sincerely, Chudinov A.E.

She had spinal surgery in Tyumen at the federal center. To say it's good is to say nothing. I am delighted!. Doctors, nurses, orderlies, kitchen. All at the highest level. Dorodnev Denis Vladimirovich!!!! ZaV. Department Nabiev David Nodarovich!!! Thanks a lot.

A very cool center of those in which there were, top-class service, attitude of employees at 5+, many thanks to the neurosurgeon Gogolev Alexei Vladimirovich, for the successful complex operation on my husband. I wish you health and well-being in everything! Thanks to all the employees who work in this center.

Hello, Federal Center for Neurosurgery, Novosibirsk You are the best! Deep and endless gratitude to the head of neurosurgery, Anton Vladimirovich Kalinovsky, for carrying out the most complex operation on my daughter Marina, 3 years old, YOU are a master of your craft and an incredible talent of medicine! I would like to wish you good health and limitless opportunities given by fate. All the best and brightest to you that this life can offer you for the best people! A huge THANK YOU to the head of the children's department, German Vladimirovich Letyagin, and the attending physician, Vasily Evgenievich Danilin, for your hard work and high professionalism, for the health and lives of our children! Heartfelt gratitude to all the medical staff of pediatric neurosurgery for your warmth and care for each patient! Good health to you and your loved ones!

They made my mother disabled. After the operation, they insisted that she would walk, instead of admitting the medical error. She can’t even eat on her own, a year has passed. Why give false hope? So that people don't go to court?

I would like to express endless gratitude on behalf of Antonina Alekseevna Polyakova and on my own behalf to the neurosurgeon Said Dzhabrailovich Radjabov. Thank you for your professionalism, effort and kindness. For the fact that this world and the people who need you so much have you! It was not in vain that you chose the profession of a surgeon. Having received the talent of a doctor from God You work so selflessly, saving people, sparing no effort. You took the Hippocratic oath to heal people, to save them from harm! Bring back joy to life! You have achieved a lot in life, With your labor and your mind, forgetting about your rest You have a soul and hands of gold, All patients know about this. When you received payment, your faces brightened and the pain went away. Hope appeared among people That the sorcerer doctor will save them. From all the sick people you saved I bow to you deeply! Polyakova.A.A.

She was operated on on September 14, 2023 for an aneurysm of the main cerebral artery in the Department of Neurosurgery of the Research Institute named after. Polenova St. Petersburg under the leadership of Andrey Evgenievich Petrov. Many thanks to all the doctors of this department and personally to A.E. Petrov for the superbly performed complex operation. I would also like to thank the nursing and junior medical staff of the department for their kind, humane attitude towards patients and high professionalism. Thanks a lot. And special thanks to the chefs for the food. This is the first time I have been fed so deliciously in a hospital. With gratitude, Chernenkova Lyudmila Vadimovna. Kaliningrad.

A year has passed since the most complicated spinal surgery. Everything is fine with me! Once again, immense gratitude to Eldar Akhmedovich Akhmedov! You brought me back to life! And to all the staff. - kind, sensitive, patient - true professionals! Timoshenko Larisa

The clinic was recommended to me in Israel. My mother has non-Hodgin lymphoma, non-GDC. We went to the clinic, already having the Israeli protocol in hand. I would like to note every assistance from the staff of this clinic, namely: Dr. Aronov in professional assistance on technical issues in the treatment of such a complex disease, dispatcher Anastasia for constant contact and sincere assistance on all issues, Vyacheslav for the timely delivery of medicines from Israel. It’s cheaper to order some types of medicines this way than in our pharmacies, I’ve tested it myself. Prices for treatment are really not low, but by regional standards, we are from Krasnodar. In Moscow, believe me, these are standard prices, there is something to compare with. The main thing is that they don’t impose anything unnecessary here, but even suggest what you can do yourself and what you can’t. At least in our case, this was exactly the case.

Radiation Scan and Analysis of Same. Was Superb. Dr Amir and staff incomparable.Assistant gave scrip for sleeping.

My story is for expats and foreigners in Moscow. Yesterday night my wife had a feeling of intense burning in her chest. She just recovered from covid (having made negative test that day). So, I took her to EMC to be faster than a state ambulance. We were at their premises at ca. 22:15. The place was not busy at this late hour. We explained our situation that we fear of heart attack or stroke. A receptionist first invited us to take a sit and wait for in-house emergency doctor. But then he realised that less than 14 days gone since first positive test. He told us urgently to leave the premises, saying that they can not help us in any way. He did not bother even to offer calling state ambulance. So, EMC pushed its patient, who might have had a life threatening condition, onto a street at midnight without any help. Beware, you should always have a plan B (and C) who you call in Moscow in such situations since evidently EMC can fail big time. Luckily for us we had other options, an ambulance from a competing private clinic arrived within 30 minutes and they helped my wife, so her life is not in danger anymore.

NOT RECOMMENDED. Visited the clinic for an emergency situation treatment. At the entrance a lady stops me asking are you aware of the fees. Minimum would be 165 euro then she says even for emergency cases we have to first fill up all the forms and formats, scan passports, take all data then we will listen to your problems. Upset about the service level given the prices. Big turn down. Also to add. I had been there after not finding a traumatolog doctor in their Arlovskaya clinic where the receptionist did same price detailing, holding me in pain at the gate and then says doctor needs time to be called even if emergency. Finally after suffering in both the EMC outlets I had to go to another local clinic. On the way in pain right now.

My son was treated here for a fractured arm. Dr Burstev did an incredible job both with the surgery and immaculately neat stitches, as with the care and attention given during follow-up appointments. Nurses and other staff also showed great attention and we really couldn't ask for more. Grateful.

Good specialists but expensive. Billed in EUR

Expensive company than a hosptial

I am a customer of the EMC for about 15 years. During the last 5 years the attitude of the hospital has changed. Before it was clearly the best place to get medical attention, especially when you are a foreigner and don't speak too much Russian. But now the game changed. Not only are they very high price and I most of the time I have the feeling that I am recommended additional check which are not needed. Now they also don't trust their customers any more. As a Foreigner, with a record in their database for 15 years, you have to prepay your treatment. I have always paid by bills with them before leaving the building on every visit, so I have not given any reason for this. And then the payment doesn't work well. The payment terminals are difficult to use / not working and the alternative is to go to the ground floor and pay at the cash register. For this money I expected perfect service. Don't get me wrong, I think the doctors are good. But the management I don't like.

Is it even legal to charge as much for health care? Seems like the regulator isn't aware of the price list of this hospital. Other than that having insurance isn't a guarantee that you'll get services in this hospital because there is lack of real time communication between the service provider and the insurance company, so you still have to guarantee payment with your bank card. If the two do not communicate in an hour, money is deducted from your card. Then back to square one...running after the insurance for compensation! Just a terrible experience to say the least.

Even after more than 25 years as a loyal customer, I was made to feel like a potential criminal who is lying about your insurance coverage. In the middle of a series of consultations and tests, I was forced to stand at the reception desk and have a lengthy discussion with the receptionist and the insurers before I could get the correct invoice with only 20 percent co-payment. This clinic is fine if you don’t mind being publicly humiliated and pay everything up front.

I am very grateful to S.P. Markin for the spinal surgery. This is a surgeon from God! God bless him!

Many thanks to traumatologist-orthopedist V.V. Romanenko. for your attentiveness and qualified assistance to my son Kirill, God bless you

This is the fourth time in this institution, two hip replacements, two repeat hip joints, each time it gets worse and worse, initially cups of the wrong size were placed, when asked why they were asked, there was no other answer at that time, the result dislocations of the left joint began, they underwent re-endoprosthetics in 2019, the right leg turned out to be 2 cm shorter, which caused the ankle to fly, in 2022 dislocations of the right joint began, I was admitted to the clinic on August 30, I just lay in bed for four days, they took a blood test, did an x-ray, That’s it. The attending physician came once and asked what and where it hurt, where the dislocations were going, that’s all. No one really reads the stories, right before the operation they asked which joint should be operated on, right or left, if he hadn’t said that it was right, they would have operated on the left one, since the dislocation of the left joint is indicated everywhere, even in the discharge the left joint appears everywhere, in the department no one bothers to read the medical history, the prescription list contains contraindications for injecting NSAIDs, which I cannot take until the allergy begins and I asked the question what they are pricking, the lack of professionalism of the treatment nurses is off the charts, they punctured all the veins and were unable to place a catheter; a nurse from the intensive care unit placed a subclavian catheter without anesthesia, because... I’m allergic to lidocaine, the second nurse on duty didn’t come on time to the call, the IV ran out, the result was that the catheter was clogged, they couldn’t flush it out, they removed it, they tried to put the catheter in the arm, they punctured all the veins again, they couldn’t put it in, the nurse from the intensive care unit put it in again, for that I thanked her very much, I told her to warn the nurse on duty when she was administering the medicine so that she would press on the vein because the whole boat didn’t go in because of adhesions in the vein, when I tried to show what needed to be done, she threw my hand away and started yelling that she knew better what to do, she started tugging at the catheter, naturally she pulled it out of the vein, and refused to put another one in for me, she screamed rudely that she knew better what to do, he sent her away and told her not to come close to me anymore, my brother came, tried to put an intravenous drip, again nothing worked, the nurse from the intensive care unit did it again, my hands were punctured into rubbish, blue, more than 30 punctures, they react disgustingly to calls, as if you can’t go out into the corridor, the sisters and nannies sit in their little room, either drinking tea or gossiping in the corridor, in general, I was left with a disgusting impression of the work of the LLP2 staff, management conduct a staff certification, many of the staff do not correspond to the position, what they do. There are no complaints about the surgeons, anesthesiologists, operating room nurses, everything was done clearly, conscientiously, for which many thanks, special thanks to the intensive care unit for their care. Case history170188.

In May 2022, we urgently arrived from Kazakhstan to the clinic. It was necessary to install a drainage to remove bile from the liver. The condition was quite serious, bilirubin was more than 500 units. In Kazakhstan it was not possible to install drainage, it did not work. Ivan Mikhailovich Davydov did an excellent job with this complex operation, many thanks to him and the clinic for this. Excellent care, modern equipment, competent, experienced doctors.

At the beginning of August, I underwent a full check-up at the NACFF clinic. I really liked the clinic, the level of high professionalism of all the doctors. I especially want to express my gratitude to the therapist Pashayeva Zhavgar Magomedrasulovna. Despite her young age, Zhavgar Magomedrasulovna is a professional in her field and helps resolve all issues related to my health! A very sensitive and responsible specialist. Good luck, development and prosperity to the NACFF clinic!!!

A good clinic, competent doctors, I really liked Nelegach Tatyana Vladimirovna. Competent professional, patient and very polite. He tells everything on the shelves, a very pleasant person. I also liked the ultrasound specialists, the comfortable atmosphere. The neurologist who did the echocardiography of the heart is very charismatic and attentive. I didn’t really like the gynecologist, Khugaeva, the feeling that I consulted not with a doctor, but in the market) I don’t like gynecologists, it’s difficult for me to have examinations, my body twitches reflexively, that I can’t do anything about it and I have to endure through force. (And I already tried to endure as best I could and lie still) this is when you try to insert lenses into your eyes and the eyelids begin to close themselves. They did a screening of the cervix, I thought I would burn with shame, during the examination, constantly “well, why are you twitching, I don’t hurt, you are having sex, but what’s terrible” post-Soviet attitude entered the chat) inappropriate questions about earnings, etc. ) Most likely, as a specialist, she is really competent, she has gone through so many institutions in her practice, but her attitude towards patients should be improved. In general, the hospital is good, I recommend. Their only disadvantage is poor management, and untimely approval of preliminary plans and estimates. The price tag is adequate, but if you go through a check, prepare for the amount not 110,000, but from 130,000 (if you are about 20 years old) and from 250,000 if you are about 60. Passed 3 times checkup, me, husband and grandmother. And they did an operation to reduce the grandmother's breasts, we are waiting for the results) Doctors - 5 out of 5 Atmosphere - 5 out of 5 Management - 3 out of 5 Politeness - 5 out of 5 Patience - 4 out of 5 Value / quality - 4 out of 5

I would like to express my deep gratitude to the doctor of the Boboshko clinic, Alexander Vladimirovich, for the most complex heart surgery, Vladimir Grigorievich Volkov. Thank you very much for your professionalism!!! God bless you!!! Many thanks to all the staff who looked after him during the postoperative period! Special thanks to Dr. Natalya Valerievna Novikova! Her attitude towards patients is an example of sensitivity, responsibility, and high professionalism!! Sincerely, the family of Volkov V.G.

My relative is dying of cancer without treatment. She is either admitted to the clinic or sent home without starting treatment due to bureaucratic delays. A person counts every day, but apparently this is not as important as a new piece of paper, right?

Above all praise, specialists of the highest class, service personnel deserve the highest marks. There is order and goodwill in everything.

I would like to express my deep gratitude to the doctors of the traumatology.orthopedics clinic.for their sensitive attention.and care during.my stay.Starting from.the head.of.the.department.to.the.coordinator. Christina, the doctor who operated on Tkalin. Artem Nikolaevich, attending physician Mikhail Belash. Andreevich, Alekhan Andrey Nikolaevich. That's what people in their places mean. I bow to you for your hard work.

There are no complaints about the doctors. There are also no complaints about the conditions that I almost wrote about the content. But ! Administrators of this institution! Make sure that you don’t have one at checkout, at the checkout counter, at the register, or at the reception desk!!!! your specialist was rushing about, but at least half of the declared 13 windows were working! I completed the procedure faster than sitting in the queue at the reception at the cash desk! Again ? You have one employee working for you! One !

According to the profile of treatment, they were satisfied with the doctor and the attitude towards the patient. Nice and professional doctors. Ambiguous opinion about a paid hospital. 6600 rubles a room. Disgusting food. True, how can you feed "it"? Cold jelly soups made from some kind of pasta, with a hint of defrosted chicken meat, half-dried pies. The husband asked the clerk for lunch instead of soup for potatoes, she said that she had promised her to another ward))). For breakfast, kefir and orange))). A bathroom with a persistent smell of sewerage, which was not eliminated, even by pouring a product into it (from home, by the way). Each gesture of the staff and procedures is paid in addition to the cost of the ward. Free was only a thermometer at night)))). Well, in general .... having such prices for paid services and the state budget, the FNCC of the 90s and 2023 remained the same (with the exception of the new CDC). The same doors in the departments, the same shabby floors, the same stream in which to find a competent doctor is a lottery for a million. All good and health!

Knee replacement was performed. The operation was painful and complicated.. I was very pleased. High specialists, masters of their craft. Just wizards. And what else I liked was the attitude of the staff. The team is united and attentive. thank you for everything

On July 20, 2023, an operation to replace the left knee joint was performed. I would like to very much thank the entire operating team of doctors and nurses of Anesthesiology for their professionalism, sensitive attitude, attention to patients, and also say words of gratitude to the entire team at the trauma department of the hospital. Thank you very much. Good health to everyone

I would like to note the high professionalism of the highest category cardiologist Evgenia Nikolaevna Preis and the medical staff represented by Valeria Valerievna. At the doctor’s appointment, I received qualified answers and recommendations for further treatment. Thank you very much for your attention and sensitive attitude towards the patient during such a huge flow. Good health to everyone!

Congratulations to the entire wonderful team of the V.A. Almazov National Center on Medical Worker Day! Many thanks to all the staff of the 1st cardiac surgery department and the 4th cardiac intensive care unit for the wonderfully performed complex open-heart surgery, you gave me a new quality life! A low bow and gratitude to cardiac surgeons Dmitry Valerievich Bendov, Amir Nasirovich Ibragimov; anesthesiologist-resuscitator Oksana Valerievna, cardiologist Yulia Sergeevna! You are doctors from God, you have golden hands, you heal the heart with your heart! Be always healthy and happy! Sincerely devoted to you Elena Evgenievna.

I would like to express my boundless gratitude to you, Denis Aleksandrovich, the head of the department, and your team at the urology department, for the professionalism, attention, and emotional sensitivity shown in connection with my treatment and surgical intervention. At the department, the doctors performed additional, high-quality research using modern medical technologies, and prepared me for the operation. The unique operation was successfully performed by a wonderful surgeon, a doctor, as people say, from God - Evgeniy Sergeevich Gilev. And I had the opportunity to return to normal life, as well as hope for a full recovery. I am already at home and maintaining my health by following his recommendations. The operation was successful also because other specialists from the department also took part in its preparation and consultation. Many thanks to the doctors: Shelipanov Denis Aleksandrovich, Shanava Gocha Shakhievich, anesthesiologist-reniamatologist Anton Igorevich Pankevich, operating nurse Alena Andreevna Kuzmina and nurse anesthesiologist A.G. Meladze. Thanks again to all the doctors, nurses, Valentina Mikhailovna, who treated and cared for me, as well as for their dedication to their profession, for their selfless service to people, returning to them the most valuable thing - health. I wish that your dedicated work and medical research conducted by doctors will be duly appreciated by our state. Good luck to the whole team! With sincere respect and gratitude, Valentina Makara!

09/12/23 I came to pick up the child’s certificate for the pool. The result: it is impossible to get to the doctors. There are two pediatricians working for the entire clinic (one for newborns, the second in the office for a one-step certificate). At the nurses' station they send you without an appointment "on a first-come, first-served basis" - naturally, this leads to swearing in the queues. I waited for two hours, left with nothing, because people came in a stream by appointment. ))) very competent system, I'm delighted)

Good afternoon. I want to express my deep gratitude to the pediatric surgeon Nikolai Fedorovich Shchapov. Doctor from God. Saved my son. EVERYTHING EXPLAINED, UNTIL THE LAST WAS IN CONNECTION. THANKS A LOT. Yes, to all the staff that was with us. Thank you very much. The hospital is at the highest level, the staff is polite, helpful. The rooms are clean and comfortable. I really liked the service. Prosperity to you in the future. Nazarova M.B

Many thanks to the therapist, cardiologist Dmitry Yuryevich Shchekochikhin. Doctor with a capital letter, a true professional. When other doctors shrugged and did not know what to do, thanks to the doctor, he was able to carefully analyze the medical history and build a successful course of treatment.