Hurler syndrome treatment in 4 Oncology clinics in Oceania with additional parameter

Husband went in for a minor procedure with an epidural. The admission forms were filled out accurately but once we were admitted the nursing staff did not understand what the term “ as required” meant when associated with a dosage regime even though we explained it twice politely. The senior nurse was aggressive and hostile tried to gaslight us, accused us of not knowing what we were talking about, effectively implying that we were stupid. So after the staff trying to insult, demean and belittle us, without success by the way, we foolishly assumed the matter as settled. Silly us! The next day, post surgery, a hostile nurse charged into my husband’s room and “told him off”. Unfortunately variations of the disrespectful behaviour continued. I arrived to find my husband upset, agitated and distressed. I came to the conclusion that it would be in his best interest to leave. It was a very unpleasant experience which we would not recommend to anyone. Needless to say we will never go to a St Vincent’s Hospital again! My husband felt disrespected, bullied and harassed.He was right. That is exactly what happened. Leaving resolved the problem with a minimum of fuss.

After staying overnight with my son for an Adenotonsillectomy surgery, I'm afraid to say that I was extremely disappointed with our overall experience. Although St Vincent's was not our first choice, we did not have the option of going to our preferred hospital due to the surgeons availability and the urgent nature of our request. Needless to say, I was not all that fussed initially as I have been an inpatient at many private hospitals and have never had a bad experience. However, unfortunately, St Vincent's did not live up to it's expectations and I've received better care at public hospitals over the years. For a start, the "room service" which requires the patient to phone the kitchen and place the order of their choice sounded like a fantastic idea to begin with however, they failed to advise that the kitchen won't always answer when you call and upon placing your order, there is up to a 45 minute wait to receive your meal. Too bad if your child is hungry or thirsty as we were trying to get through to them to order our breakfast for 1.5 hours with no success only to be told we could not go home until my son had something to eat - not sure how they expect that when there is no food for him to eat?! There's also no set meals so if you can't get through on the phone to place your order, you simply don't eat! Also, the food in general was of poor quality. All the "hot" meals we ordered were served cold and utterly tasteless. My son was in severe pain following the surgery and vomited during the middle of the night which warranted the call for a nurse as his bed sheets were all soiled. Whilst a nurse arrived promptly to our call for help, to clean up the mess, she simply pulled off the soiled sheets, threw a towel on the floor to cover the vomit which spilled off the bed and left the room, leaving my son to sleep in a half made bed with hardly any blankets. The next morning on our discharge day, there was only one nurse rostered on for the entire paediatric unit and she advised that her shift finished at 11am and she has to close the ward down which means all patients had to be discharged by 11am. Too bad if there were complications and your kid was required to extend their stay!! I don't blame the nurses as it's not their fault they are the only ones rostered on and the one who was, was doing her best considering. However, I am incredibly disgusted with the deplorable service provided by the hospital in general, considering we pay an arm and a leg for the best possible health care - it's a disgrace. I will never go back to that hospital and will stick to our preferred option in the future.

My son aged 6 had a Adenotonsillectomy which required an overnight stay. The Children's ward was cheerfully decorated in a dinosaur theme which also included a games area. The nurses were lovely and very thorough. We had a lovely experience. A great hospital and a fantastic Children's ward.

A great hospital made so by its staff. The nurses make this a five star place to be (even for those of us who loathe hospitals). The compassion, attention to detail, and FOLLOW THROUGH on things which are promised to take place. Meet anyone in the mingling area outside and there isn’t a bad word to be said for all it’s arenas of practice from mental health, alcohol counselling, pain control and so forth. Management must be doing something right because staff are actually happy doing what they’re doing, which has the obvious follow on effect of stellar patient treatment. Where other places are found wanting, your loved ones will be well taken care of here.

From my wife Christine McKinsley. Had a knee replacement done on 17 aug by Dr Weber. The first few days i wasn't sure how I felt but they discovered my blood was low so after transfusion I got along in leaps and bounds. My heartfelt thanks to the doctor and nursing staff in medical ward and also to the physio staff. You all do a wonderful job. The catering and cleaning staff nursing staff etc were all so friendly and professional. I was in Portsea Ward Thank for taking care of me whilst I was there and I won't hesitate to recommend Beleura hospital to one and all. I wish each and everyone of you the best in your chosen professions.maybe I will see you all again later in the year with my right knee. 😂😂. Many many thanks. From Christine McKinsley

I recently had a total Hip Replacement at Beleura Private Hospital and also did inpatient Rehabilitation on Mc Crae ward. I cannot thank every single person enough. From the moment I walked in the doors the professionalism and care I received was second to none. I would highly recommend Orthopaedic Surgeon Brad Crick he has done an excellent job for me personally ( thankyou so much ) All the Drs, Nurses, OTs, Physiotherapist, Porters were absolutely amazing they all worked so well as a team and made me feel welcomed and safe ( Thankyou ) Thanks also goes to the catering team the food was excellent ( my trays always went back empty 🙂 ) and the staff were lovely and friendly. All the cleaners were friendly and easy to talk to everyone and did a wonderful job. I'm currently doing outpatient Rehabilitation there and still finding everyone so nice friendly and helpful. So I'm guessing you can see by my review that I personally had a wonderful experience. Regards Kerry Pyne 🙂

Treated at the old Peter Mac many years ago and it was beyond excellent. But my experience at the new Peter Mac includes a lost referral, lost history, lost blood results, lost u/s results, relevant medication information not given, existing medical conditions potentially impacted by proposed treatment not considered or discussed, and incorrect information documented that contradicts what my GP sent to them AND which contradicts reports from when I was there before!. Trying to get it sorted out - impossible.

Subjected to absolutely disgusting treatment at this hospital. Elective Surgery Manager was rude , terse and has no people skills what so ever. As expected when I lodged a request for explanation the Cancer Surgery Manager chose to disregard key facts and dismissed me completely. Patients aren’t just Medicare numbers . Avoid this hospital at all costs .

The peter mac staff are all awesome from the security and domestic staff to the teams of surgeons and nurses who helped me through the whipple procedure i had back on 15th March . I cant say thankyou enough. The ongoing post operation treatment has also been fantastic.

Twice I have been an inpatient at this hospital. On my first stay, I thought I’d got lucky and struck a few excellent doctors and nurses. But now, after my second stay (a year later) I realise this is a superb hospital. The kindness was almost overwhelming. I felt like the best friend or close relative of everyone. From the reception ladies, to the terrific doctors (esp Dr Mishra), the amazing nurses, even wards men (thanks Wayne), St Vincent’s Private Hospital is filled with care, compassion and competence. Sure, I love the hospital near my home town in Rockhampton. But if I’m ever in Brisbane and am unfortunate enough to get sick again, I hope I’m fortunate enough to be their patient. Thank you to everyone for all you did for me. I’m very grateful to you. ❤️

Shout out to all of the gorgeous nurses in ward 1A! Unfortunately was admitted twice but all of you made an awful painful experience a million times better. I didn’t like the fact that I was in hospital and away from my family and in pain, but it was like having friends close by. You all actually cared. You were all so lovely, caring, friendly, empathetic and advocated for me. Thank you! You all deserve a massive pay rise!

Recently stayed overnight after gallbladder removal surgery. I was very unwell afterwards, but the nursing staff were beyond amazing and caring. Loved the room service food too with great choices (have attached photos in case anyone wants to know in advance what you can get).

If you want to feel safe, respected and that you will recieve decent care, then don't go to this Emergency Department. The street from the car park to the ED is dark and deserted, the triage nurse was condescending and kept trying to put words int my mouth about my own pain to minimise it. The admin person was deadpan and complained that my doctor was not on their records at the same address I had for her. She kept looking at me like it was my mistake. The room seemed deliberately set up to get rid of people, the temperature was freezing cold, the television was so loud that people were having trouble hearing their name called. It also forced staff to yell names out, contributing to the excessive unreasonable amount of noise. Some poor baby was crying, clearly distressed, for half an hour (seemingly unattended) and three elderly people were left in cold uncomfortable seats that caused my body pain, so I hate to imagine their pain. And to top things off, the hand sanitiser was empty, so chances are if you touched anything, it would have germs on it. Just don't go there. Clearly they don't want you and you will be in more pain leaving than when you arrived.

The emergency staff and most of the nurses were fantastic. Once you reach the maximum subsidy they get from the commonwealth government regardless of how sick you are. You are moved to the ends of the hospital with no care or caring. I was told my private health insurance made no difference here and I should be in a private hospital. We wonder why our health system is so screwed up. This is a great indication why. I will be going private from now on. I know where my business is not wanted.

My friend was in hospital for 5 hours complaining she was unable to breathe due to a most likely respiratory infection. She got let into emergency pretty fast but then after getting a few blood tests and a cannula nothing else really happened. After the cannula, the doctor said she most likely had an infection, she asked them ‘what type of infection’ and he said ‘I don’t know, I’ve only known you for two minutes’. And then after waiting for a while, we asked another nurse if we could just get an update and she said ‘if we ask the doctors, that means they stop working’ and then opened our curtain and wouldn’t let us shut it because ‘she wouldn’t be able to see we were there’. Then after another hour we asked to leave and then the nice nurse that we liked said we could because they did all they could, when they could’ve told us that many hours ago. We still have no idea what is wrong with our friend #emo 😖

My experiences here aren't great at all. My partner had his appendix out here this year, kept cancelling his operation at 5pm then not giving him any dinner, this went on for 4 days. I was there for a scan for my pregnancy last week. Person doing it was male, and quite rude, ignored any questions I had. This morning we went again to find out our scheduled scan was already completed two weeks ago, that they had done two scans in one, so we went to have our bloods done. I'm not usually impatient ornride towards hospital staff at all, but the woman who pushed in front of us was seen first, and the phlebotomists, all 5 of them the. Left us sitting there and saw 9 other people ahead of us while we waited for over an hour, they just saw anyone else who walked in. It was so rude I eventually got up and walked out.

This is my second visit for surgery the first was a couple of years ago for a kidney stones I fasted for 3 days waiting each day for the non-existing surgery. Today I am in exactly the same position, day 2 of fasting. If you are needing emergency surgery, expect to wait, be frustrated and be hungry. PS they will give you a couple of sandwiches when the message finally comes in that the surgery will be tomorrow. Walk out get hit by a car and then you may get looked at

Alone mother with my child. We had the worse experience. Staff don't communicate, no catering for remote living transports. Indigenous just abuse the staff and ended up in our room also using their kid as a place to sleep the night. I hope to never be sent to this place again.

You will probably die before you get your waitlist surgery appointment date, unless another hospital saves you out of your misery. Stay away from this hospital as there is absolutely no compassion here!!

This was my fourth time at this hospital for post-surgery exercise, today I had two other people's records on my file. The staff member that was assigned to me, was confused because of this. I was there for my back exercise, not my hip or knee. You can only blame the Qld health office staff for this. THANK GOD I WAS NOT HAVING A OPERATION. ANOTHER MISTAKE FROM QLD HEALTH

I had a hemorrhage type stroke in the ER room after being denied the usage of Ryan's Rule, staff is extremely rude and unprofessional. Since the stroke I have been refused triage and denied medical treatment every time I attempt to present to emergency with the Doctor's very rudely telling me they aren't going to treat me and to go home during my acute medical episode which included my brain actively hemorrhaging. Have only ever received treatment when the Police have done an EEA which involved the staff drugging with me high amounts of Morphine the first time and Fentanyl the second time making me unconscious for the EEA before releasing me outside which resulted in me getting hit by a car. Incredibly disgusting behavior by an abhorrent group of staff and pathetic excuses for Nurses and Doctors.

I had self funded surgery here 6 weeks ago. My surgeon and anaesthetist were amazing. 10/10. The nurses I had when I came out of recovery were great. Attention to detail, caring, wonderful. The nurses I had the following day were average. The surgery cost $11950, I was in hospital less than 18 hours. My admission was messed up, so after fasting from 9pm for an 8am surgery, I wasn’t admitted until after 4pm. Surgery went great and was out of recovery by 8pm. The next morning I wasn’t given any fluids or anything and was discharged not long after waking. I was given the wrong discharge papers and medication scripts too. Please do better in future. I would definitely think twice about having surgery here again.

All the staff at the Wesley are amazing. Even when staff are super busy, they are friendly, they make time for you and your every concern. The staff look happy and appear to work as a well oiled team. Comfortable rooms and great food choices (including Vegan options) and service. Remember, it is a Hospital not a restaurant. It really is the best! Thank you Wesley

Professional staff, every nurse and doctors were amazing at the Wesley hospital. Special thanks to Dr GOUGH who performed an excellent thyroid operation.

Saved my life (twice). Had I been anywhere else I would be 6 foot under. Thank you so much to all the staff who helped me and medical records in particular Ms Gee who was highly competent. I would like to thank the surgeon and staff who operated on me. I simple do not understand the negative reviews here, try going to other parts of the world and see healthcare others have. Thank you.

I recently had a positive experience at Canberra Hospital, and I'm eager to share my feedback. Dr. Phillip, the surgeon, delivered an outstanding level of care, demonstrating expertise and professionalism throughout. Nurse Manita was incredibly cooperative, ensuring I felt comfortable and well-informed during my stay. The follow-up care from Nurse '' ROSE'' was exceptional—her kindness, care, and sweet demeanor made a significant difference in my overall experience. I appreciate the dedication and compassion displayed by the medical team at Canberra Hospital.

Very professional staff working efficiently and compassionately under enormous pressure due to a chronically underfunded hospital system. Many of the negative reviews reveal narrow minded attitudes and highly unrealistic expectations of a stressed public health system. We are lucky to have such a hospital in Canberra, which last I was aware is actually the second busiest trauma hospital in the nation- accepting patients not only from Canberra but transfers from regional areas and Sydney.

I can't thank the staff enough. Our time at RPH was outstanding care. The nurses do amazing job. These people who work in our hospitals are angels. I understand our health care system has its hiccups. But with put there care my son would not be in the great care he us today

I want to thank the Emergency Department Dr Poppy when my Dad was brought in after collapsing at home on the 10th of November. He was then transferred to ICU and looked after by Dr Peter. We can’t thank all the nurses and doctors enough! Your kindness and care were outstanding. You always kept us up to date and had time to explain Dad’s situation.

I was hit by a car on Wednesday whilst riding my scooter home from TAFE and was taken to Royal Perth Hospital for emergency by ambulance. I want to thank all the paramedics, nurses and doctors who looked after me and did every possible test to make sure my bones and internal organs were not affected by the collision. I stayed there from 5 p.m. until 2 a.m. the next day and was discharged after confirmation. I only had muscle injuries and was able to return home safely. Thank you so much for all the support and kidness ❤️