Hurler syndrome treatment in 14 Oncology clinics in Brazil with additional parameter

One word: GRATITUDE!!! I have gratitude, a feeling of recognition. I want to thank you for EVERYTHING. Receptionists, Doctors, Nurses, Cleaning Assistants, Cafeteria, Physiotherapists, Radiologists, everyone in general who gave and is giving us support in a difficult phase, which makes it a little lighter...... GOD BLESS THEM, ALWAYS.

Apart from the reasonable delay for the first pain medication (renal colic) and the first nurse who pierced my arm 3 times (skinny with bulging veins) until she was able to access it), the service was good, everything else.

I would like to thank all the staff at Hospital São Lucas for their service and care. I arrived with what seemed like a simple cough and had to be hospitalized. I am extremely grateful to Dr.Thiago Soares Gomes for his diligence and prevention in decision-making, and to Dr.Filipe Miranda Bernardes for his constant monitoring. When an X-ray was not enough to detect the true cause of that cough, they did their best to clarify the picture so that today I am better and continue with the necessary care. Know that my family, people who love me and I greatly appreciate the professionalism and so much humanity of all of you.

Excellent nursing team, I had problems on a few occasions releasing the medication (bureaucratic part), but something punctual. The team was very attentive and dedicated to the patient. Very happy to recognize the quality and exceptional service of the entire team.

Great service, especially from the receptionists and customer service assistant. I didn't really like the hematologist's care, but everything else was very good.

I gave priority to starting treatment at the clinic, on the recommendation of an incredible doctor. I was received very well by Dr. Clarissa and Dr. Liliana who are accompanying me in this process, but the reception team, appointments, among others, do not have the same desire to help, I believe that they are not strongly aligned with the purpose of the institution, there is no point in having welcoming doctors and the other sectors are involved in the process . Immediately they need to go through a recycling, the clinic has to be a welcoming and harmonious place.

Hospital Paulistano is excellent, incredible professionals from reception to departure, delicious food, I was very well assisted by neurosurgeon Dr Adil Bachir and Dr Rodrigo during my anterior and posterior lumbar arthrodesis surgery, on the L4, L5 and S1 vertebrae, almost 8 hours, doctors on duty, very human and attentive, wonderful nursing technicians, excellent nurses, excellent and committed physiotherapists, it was an immense joy 1 day after the surgery to get up from the bed and walk around, without any support. My mother waited for my surgery in a room, fully assisted by the staff and nurses, thank you in advance for so much effort and care. Congratulations to everyone involved. The only negative point is the shower, which doesn't heat up very much.

Today I had it at the oncology outpatient unit with an appointment more than 30 days ago. When I got there I found out that it was no longer scheduled. Because my plan, which was Amil, changed on 11/01/23 to Bradesco and they simply didn't send me a confirmation email. In other words, lack of respect and I missed two appointments, one with the oncologist and another with the general surgery team (which has already been rescheduled 4 times since September) Today I was rescheduled for 11/24 by the oncologist and the general surgery team oncology on 12/11. I complained to customer service. What I heard was . I'm sorry ma'am, let's find out what happened. Very inhumane towards cancer patients. And on June 14th of this year, during my first surgery, they lost all my exams from the surgical center back to the room. What I heard from the Surgical Center Manager... I trust my team... This has never happened... In other words, I'm the one who fights behind the exams to continue the treatment. I had to go to the Lavosier and Tecnolab laboratories to request a duplicate of the image exams.

I had knee surgery on 6/24. The service was all polite. They always ask you to arrive two hours before surgery completely fasting. Before the surgery I spent time with nursing, with an anesthesiologist and with my doctor. All facilities clean and well organized.

Doctors unprepared to provide PA care. As it is the only hospital in the city, professionals should have more experience.

Great service with my mother who had surgery, doctor, nurses, cleaning staff all very attentive. Grade 10

We are always very well attended to, we are Unimed customers, the call center has become an extraordinary differentiator, the new hospital facilities are above expectations. Attentive clinical staff concerned with well-being.

I visited Sta Casa on two occasions as a patient and as a visitor, they provide an excellent service with trained doctors and well-prepared staff, I was well attended to and well treated by both......

Hospital concerned with providing quality care for everyone! Excellent projects will still come to the city that will provide better health for everyone!

Many are good, but in chemotherapy there is a need for more nurses to care for us who are undergoing treatment

I want to thank the entire team who were with me throughout my hospitalization, who welcomed me with so much affection and dedication. This team knew how to help me when I was really bad, they held my hand, and always gave me words of comfort. Unparalleled empathy. Congratulations to everyone and I ask that God gives double everything you gave to us. Kiss in the heart 🥰 I don't remember everyone's name, but it ranged from doctors, nurses day and night, to other sectors, physiotherapists, kitchen maids and cleaning assistants.

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It could be 5! BUT IT'S BEEN A MONTH SINCE MY SON'S RESULTS HAVE NOT BEEN OUT. I DID IT BY REFERRAL FROM THE HEALTH CENTER! THEY SAY THE DOCTOR HAS NOT DONE THE REPORT YET! ONE MONTH? MY SON NEEDS THIS REPORT TO BE ABLE TO GO TO NEURO FOR A DIAGNOSIS. ONE STAR FOR LACK OF RESPECT! Did it in October and so far nothing! I call! I send an SMS. TERRIBLE ABOUT THE DELAY IN THE REPORT RESULTS!

Saturday, November 25th, I was at GRAAC to have an MRI of the lumbar sacral spine, referred by the UBS, I was well received at the reception, attended to at the time the MRI was scheduled, attentive nurse and exam technician; bathrooms and very clean facilities, and after leaving with exam in hand, to my surprise, I even received a snack kit

Very good hospital. service ten. Congratulations to everyone who works at this hospital. very polite staff who care about the lives of patients and respect their companions and relatives 👏👏👏👏👏👏

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Excellent

First-class hospital, very beautiful and organized, not to mention its huge size!!! Top service!

Execelente hospital

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We have been waiting for two hours to be seen in the emergency room by Unimed. My son is classified as “blue”. This is considered not serious. All, I repeat: all the people who have arrived so far have been attended to before him. Does this mean: we arrive, register and wait for new patients to come in and go before them??? That's right? Knowing that we will always wait a long time, because another color gets in front of it. ABSURD.

I went to the obstetric emergency because I'm 13 weeks and there was bleeding. Another pregnant woman and I waited for 2 hours of service, we went to ask and the girl said that it was protocol according to the assessment, finally I arrived at 7:35 and was seen at 9:41 pm and the chairs were empty and they weren't even attending!

Rgy

Great and fast service. English speaking Doctor and nurses were available. Recommendation for Expats.

The hospital is good, but in my opinion it can improve more. There are doctors and others not so nice and thoughtful. The reception is good, some people (receptionists) are polite, friendly ... The same in relation to the security guards. There should be more integration, communication among the coworkers. As I told you it could be better, even in its standard procedure, being more effective,

Excellent service and support regarding many domains. We had a undergo and the whole staff was extremely supportive (from the first approach, passing by intensive care and ending on maternity domain). Its definitely one of the best hospitals in Sao Paulo.

I found cordiality and care all the time in my hospitalization

Took us 3 hours to get treated with a basic appointment (ear infection) and sort out the insurance stuff, very slow

Hospital is not well equipped to attend cold symptoms at the emergency. You will have to wait for the arrival of an specialist at 10 AM so that he can look inside your ear canal with an otoscope. Even my throat was looked with a cellphone light. A disappointment. See images of equipments that should be part of the emergency below at the national manual of emergency.

Clean hospital. But extremely expensive. They didn't inform us of the costs and we had to pay 10 times of than other european countries.

Terrible service. Completely disorganized, does care at all about their patients. I was begging them for help in resolving a billing issue and every department just ignored me. Do not go to this hospital. I went to this hospital to get an outpatient procedure done which required that I have an attendant with me. The hospital organized for an attendant to be provided, at a fee, from an outside company. On the day of the procedure I was brought to the billing department by member of their "concierge" team, Fernanda. They have an international "concierge" service which basically provides translators so that you can navigate the hospital if your Portugues is not great. At the billing office I was presented with a bill for the cost of the procedure. I agreed to pay it and was then given a credit card machine to make the payment. When the machine arrived, the amount they were requesting was higher than the quoted amount. When I asked Fernanda, she explained that the additional amount was for the cost of the attendant. I paid the invoice and was only provided with a little slip of paper that showed the amount that I had paid. It didn't say what services I had paid for, just that I had paid a certain amount. I then went and got the procedure done. I was put-under, so I don't know how the actual medical procedure went, but from what I saw before I went under, the medical professionals seemed like they were doing a good job. After the procedure was finished, I was brought to the payment office and presented with a new bill. The bill included the additional cost of part of the procedure, the cost to have a biopsy analyzed and the cost of the attendant (which I already paid for). For the next 3 weeks I was going back and forth with the International department, the complaints department and the billing department, trying to get them to acknowledge the fact that I had already paid for the attendant. No one from any of those departments did a single thing to try to help me. Each department passed me off to another department. The complaints department didn't even reply to my complaint. I had to call them up weeks after I had filed a complaint and they were fully aware of the situation, but didn't have enough respect to let me know that they were working on my case or bother to email or call me to help get it resolved. Neither did the International department. When I asked them to help me resolve the issue they just said "this is not my department, I don't know anything about billing" even though FERNANDA was there and was the one that explained to me that I was paying for the the price of the attendant. The billing department just kept sending me the same invoice over and over again and never acknowledging that I had paid for the attendant. It was only when I finally decided to go to the hospital and pay the bill that anything got done. I had to physically go to the International department and demand that they resolve the issue that instant. I spent another 2 hours going to different departments with the "concierge" lady, getting into arguments and explaining over and over what had happened. It was only then, that they acknowledged that the woman who processed my payment allocated the entire amount to the cost of the procedure, which was why this bill for the attendant was still outstanding. At my insistence they finally removed the charge and I was able to pay the invoice. If you go to a Brazilain Hospital, make sure that you get an itemized invoice for every single payment that you make. A little slip of paper with the amount on it is not enough. They will change the amount that you owe them and you have no proof of what you have already paid for. At the end of the day, I probably wasted about 4-5 hours of my time writing emails, sending messages on Whatsapp and arguing with the staff at the hospital. Not to mention all of the frustration it caused. This could have been resolved after 1 email, had anyone at the hospital taken ownership of the problem and been accountable. DO NOT GO HERE - THEY DON'T CARE ABOUT THEIR PATIENTS

One of the best hospital in South America