Hurler syndrome treatment in 22 Oncology clinics in Oceania

I want to express my deepest thanks to the doctors and nurses at RCH, particularly the nurses in Possum ward, for their exceptional care of my daughter Ophelia Low. Your unwavering attention and support truly alleviated our stress during her stay. Thank you sincerely once more.

I was at the emergency with my child today and we saw Dr Kae. He was very knowledgeable. He put me at ease with the concern I was having. I was very worried coming in and waiting long but the 2 hour wait went very quick. I was offered something to drink from a volunteer and when my child’s name was called, the nurse even helped me pushed my pram for me. I’m very happy with my first time experience at RCH today.

Salute to all the doctors and nurses working at this hospital. You guys were awesome! I cannot thank you enough, the amount of support and love show to my 4 year old son who had an Asthma attack. Very professional and friendly. You saved my sons life and il be forever grateful. 🩵💙

Worst worst experience ever in my whole life. Brining my child to the emergency and surgery ward, kept him fasting for unexpected hours. My poor child was asking for food Was no updates and everyone was coming we can’t give him drink as they gona take him to the surgery Nothing happened even after waiting 13 hours in without food😡

After having a great experience at the NICU for numerous weeks, my wife and I were looking forward to spending time in 9B as we were allowed to stay the night until our baby boy was discharged. However, that, the care from our surgical team and the allied health team was the only great experience we had at QCH. We did experience a couple of great nurses throughout our time there though, but unfortunately we both felt the nurse care and support was not there. The change overs each day were completely different and wrong, it took a long time to get help when we buzzed (luckily they weren't any emergencies), things were often forgotten or we were told wrong times for when things will be done, we were told cares would be very 4 hours (but this was rarely completed), there was also less optimal/hygienic technique with certain procedures and to top things off, we were given someone elses milk when we were discharged (See the image). Obviously, for confidentiality reasons I blacked out the name. Thankfully, my wife and I both work in the health care system, and we both knew what to do and looked after ourselves. We both hope that no one ever experiences what we went through and that the staff improve their values, procedures and care.

My hospital experience has been flawless from the beginning. The whole process from admission to going through surgery to paediatrics ICU and back to the ward has been carried out professionally and faultlessly from beginning to end. The Neurosurgeons, ENT, Paediatric, Infectious Diseases and all the wonderful nurses have worked tirelessly to make sure my son fully recovered from his infection. I can’t praise the hospital enough on its amazing service. Well done and I am forever grateful. Thanks Jane