Hurler syndrome treatment in 29 Oncology clinics in Brazil

Terrible service, absurd delay at reception of more than 40 minutes. Unprepared employees with no information on service protocols. Both for scheduling by phone and in person. I scheduled an MRI and confirmed the information before making the call and when I arrived to be seen on the second attempt (as the first time I was unable to be seen because the exam was 2 hours late) the attendant gave me completely different information, stating that I would need to change the order on behalf of the council, and I confirmed it with the telephone attendant twice regarding the council. Anyway, on top of that, I agreed to take the exam because I was urgently required, but it was 1h30 late, which ended up being a little longer. The hospital used to be excellent, but it has lost its quality, I don't recommend it.

Terrible in terms of hospitalization... I arrived at the hospital with my daughter with blood in her stool... I was well looked after in the ER and, after carrying out the tests, the doctor informed me that hospitalization would be necessary. We were directed to the infirmary and here I have been ever since. I was admitted to the hospital on 11/27/23 at 7:58 pm. I signed the authorization for hospitalization on 11/28/23 at 01:48 and now it is 15:50 on 11/28/23 and we are still here in the infirmary... They should warn you before admitting you about all this! A lack of respect. My daughter has been on a stretcher for 14 hours and I was sitting in a chair for hours and after a lot of complaining, they put an armchair...

DON’T HAVE CHILDREN IN THIS PLACE😡😡 Worst experience possible, we signed a maternity plan at this unit, everything was wonderful when presented, I thought it would be a good place for my wife and daughter. My wife went into labor so we went to the hospital. Arriving at the location, my wife went to the service. There was no room available, so we did the whole process by pushing our bags around the hospital. I asked the receptionist who informed me that this is quite common at the place, as it happens every day and so I asked someone from management (both rude) and said that I would only have a room around 9 am and at that time it was around midnight. night and a half. Of course it didn't happen, he only got to the room around 2:30 pm. In short, my wife had our daughter, I continued through the hospital pushing suitcases, all of this was nothing close to what my wife went through. THEY SIMPLY LEFT MY WIFE FOR 5 HOURS IN THE RECOVERY ROOM ALONE WITH THE BABY AFTER A RACHI BECAUSE THERE WAS NO ROOM I CAN'T GET OUT OF MY HEAD HER CRYING TELLING ME Several women passed through the recovery room and went to their rooms, and they remained there with no one to help. We arrived at our room after much insistence and were poorly attended to by the staff while my wife went through what she went through. INHUMANE HOSPITAL WITH TERRIBLE ADMINISTRATIVE STAFF NOTE: Nurse GABI was incredible in providing care at all times In other words, look for another place for such an incredible moment in life.

It was a great experience! From the gate to medical care, I was treated very well. Initially, I received information that the expected wait would be two hours and I decided to stay calm, settle in and wait. The important thing was to have already gotten there. After all, everything that seems bad can certainly get worse! So, everything worked out! The doctor on duty is super TOP, attentive, very assertive for her young age. The nursing technician Arnaldo with the hand of an angel that I didn't even feel the discomfort of access. For the laboratory exam I was seen by Jefferson and when I thought it was going to be horrible, he was already done!🫠 The doctor who took the shift and discharged me was also great!!! What professionalism, what a high level of this team! Thank God everything was perfect! And my plan is no diamond!!! Thank you, God, Congratulations Emergency Hospital Santa Joana! November 2023

I went to the hospital a few times, both for consultation and emergency. What I can say is that the Hospital is very organized, has very well trained staff, I have always received very good service on the phone. I saw a lot of people criticizing here and I decided to tell my positive experience, it doesn't mean that I didn't encounter problems, such as a consultation that took 2 hours to wait, but in this case it was an isolated professional, I don't believe that the hospital itself is bad, but Like everywhere, there are good people and others not. The rating I give is 5 stars, as most of the staff are attentive, careful and the structure is excellent! In short, Hospital Santa Joana is of excellent quality, has very well-trained staff, they answer the phone and answer your questions very carefully. I attributed my bad waiting experience to a specific doctor, the others were excellent, so a very good hospital, congratulations!

I had to take my 3 year old daughter to the pediatric emergency room and unfortunately I experienced racism from the first contact with the doctor asking me if I was the mother, because my daughter was white. I've never seen a children's professional not interacting with the child, not conditioning, nothing... Super rude, cold, indifferent. I observed her serving a white family and it was totally different. I felt violated. I don't recommend Santa Joana!

One of the best hospitals in town Good service and regular ER

Nice hospital

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Good afternoon!! My name is Taynara, and I was admitted to the unit on 11/3/2023... with severe headaches and vomiting, and was soon sent for exams and measurements. I was immediately taken to the ICU, with full medical supervision from Dr Giuliano and his emergency team. On the 4th (Saturday), after more tests, a tumor was seen requiring surgery, which was carried out last Thursday, 11/24. The surgery was a success, the entire tumor was removed without any further complications. Today Monday, 11/27, I left the ICU and am recovering in the room. I would first like to thank God for the entire process, and for the Dona Helena team... from the nurses in the emergency, ICU and maternity ward. Thank you for all the love and care, to everyone I had the pleasure of meeting, they made this struggle easier, they all brought me a lot of confidence and serenity. Thanks mainly to Dr Giuliano, for all his professionalism and clarity. By ICU Techniques morning and afternoon (Karina, Karen, Carol, Larissa, Paula, Ângela, Anderson, Roberto) Amanda for all the braids in her hair before and even after cutting her hair for the surgery she took great care to wash , hydrate and make everything feel lighter after surgery. Night technicians and on-call technicians, physiotherapists Rose, Milena and Najara. The maternity nurses, technicians, kitchen maids and the entire team!! Thank you very much, and may God bless each one of you greatly!!!

I've been with my grandmother at HDH twice in the last 30 days. The first time on October 21st in orthopedics, service provided by the doctor Barbara Miroski de Oliveira Pinto. The second appointment was today, a clinical appointment by doctor Murilo Melocra. In both appointments, the doctors were very clear, detailed and were excellent in their consultations. Even though consultations were carried out in the emergency room, the service was very complete and all possible information was provided. Service at reception and screening was also very good and courteous.

On Saturday, 02/08, my wife and I were admitted to the hospital through the emergency ward. We needed obstetric care. The reception was perfect. The nurses were amazing. The doctor who carried out the first assessment did well. But everything fell apart when they told us that there was NO doctor responsible for ultrasounds at the hospital, they were on alert. This specific doctor was supposed to be at the beach, as it took him over an hour to arrive. When he attended to my wife, he treated it as if it were nothing. A cretin. In a moment of total fragility. Irresponsibility on the part of the hospital for not having a team on duty (probably to save a few bucks) and the doctor is certainly from that new generation who only thinks about fundraising. Ultrasound care was vital for us, regardless of whether it changed the result or not. We just wanted an answer. The doctor (whose name I will refrain from mentioning here, but you will find out from the ombudsman) came in, gave the diagnosis and simply left. He left the rest to the other doctor who attended to us first (very well) and to the nurses. There's no point in having a hospital that prides itself on having whatever it is, with each professional identified by the color of their uniform and having emergency medical care that is rubbish. Ridiculous. Unfortunate for a hospital that was once a reference in the region. As for the doctor, I wish him no harm. I just want life to give him the same treatment he gives his patients. And I say this from the heart because there is time to change and be better.

This hospital is terrible!!!! I had an ear problem last month and I went to this hospital that charged me for a consultation without first telling me that they did NOT have an ENT doctor available who could help me (even after having gone through the screening), and now even having spoken to the ombudsman, they claim that I was notified, which is an absurd lie. What I take away from this is that in addition to having terrible service and incompetent nurses, they also lie. Don't go to Santa Paula, they won't solve your problem, and then they will claim that “you were too stunned to understand” which is an absurd lack of empathy and humanity for a hospital to say something like that.

Second time this week I spent this week in the emergency room of this hospital, because the medicines prescribed by the doctors are not relieving my pain, I have flu-like symptoms. I haven't slept almost at all this week and today in particular, I stayed up all night feeling a lot of pain. It is not possible that I will have to go to the emergency room for the third time. If I go, it won't be in this hospital. Update: I went to the emergency room for the third time this week, but in another hospital, I was howling in pain, I knew something was wrong, as I was feeling very ill and didn't get better with any prescribed medication. I was diagnosed with sinusitis in another hospital, I remember that the last doctor at this hospital said it was nothing serious and didn't even give me an antibiotic and said it was influenza. They gave me nausea dosage in the amount for a child and not for an adult and in a greater number of hours. I no longer trust this hospital and will not return again.

Good afternoon everybody. My 18 year old daughter was hospitalized on 10/06 with teratomas on her ovary. A huge scare, because we went to the emergency room with suspected kidney stones. We were very scared and very worried, but I would like to record here the excellent and extremely humanized care provided by everyone, without exception, at the hospital. My daughter had recently turned 18 and so I couldn't sleep with her in the hospital, imagine my despair and worry? So, in addition to never being hospitalized, she had to be alone. But, all (without exception) the nurses, receptionists, doctors, were very careful, loving, attentive and caring. I would really like to remember everyone's name (and I recommend that the hospital look at the days of this shift to really recognize these professionals from 10/05 to 11:20 pm to 10/08), but I was very nervous, but, I remember Carol, Kelly, Luana (in the emergency room), Dr Manoel and the team that successfully performed the surgery to remove the teratomas on my daughter. Those whose names I don't remember (especially a nurse who attended to us in the early hours of 10/06 who was so loving), please forgive me, they are no less important in my gratitude, as I said to some of you, for For me, it is not simply a profession but rather a gift of caring for others. I couldn't spend 24 hours with my daughter in the 3 days she was there, but I'm sure that God chose all the people who took care of her correctly. Congratulations to the hospital, which recognizes its team and always values ​​the people who work there. I also mention the cleanliness of the hospital and the rooms, which are cleaned constantly. My daughter continues to recover very well. I am grateful for Dr. Manoel's assertive clarifications, which left us calm and confident as my daughter continued. I noticed that all medications, all procedures that were performed, were calmly explained to her, eye to eye, realizing whether she was understanding or not. Thank you all very much, may God bless you always.

One word: GRATITUDE!!! I have gratitude, a feeling of recognition. I want to thank you for EVERYTHING. Receptionists, Doctors, Nurses, Cleaning Assistants, Cafeteria, Physiotherapists, Radiologists, everyone in general who gave and is giving us support in a difficult phase, which makes it a little lighter...... GOD BLESS THEM, ALWAYS.

Apart from the reasonable delay for the first pain medication (renal colic) and the first nurse who pierced my arm 3 times (skinny with bulging veins) until she was able to access it), the service was good, everything else.

I would like to thank all the staff at Hospital São Lucas for their service and care. I arrived with what seemed like a simple cough and had to be hospitalized. I am extremely grateful to Dr.Thiago Soares Gomes for his diligence and prevention in decision-making, and to Dr.Filipe Miranda Bernardes for his constant monitoring. When an X-ray was not enough to detect the true cause of that cough, they did their best to clarify the picture so that today I am better and continue with the necessary care. Know that my family, people who love me and I greatly appreciate the professionalism and so much humanity of all of you.

Excellent nursing team, I had problems on a few occasions releasing the medication (bureaucratic part), but something punctual. The team was very attentive and dedicated to the patient. Very happy to recognize the quality and exceptional service of the entire team.

Great service, especially from the receptionists and customer service assistant. I didn't really like the hematologist's care, but everything else was very good.

I gave priority to starting treatment at the clinic, on the recommendation of an incredible doctor. I was received very well by Dr. Clarissa and Dr. Liliana who are accompanying me in this process, but the reception team, appointments, among others, do not have the same desire to help, I believe that they are not strongly aligned with the purpose of the institution, there is no point in having welcoming doctors and the other sectors are involved in the process . Immediately they need to go through a recycling, the clinic has to be a welcoming and harmonious place.

Hospital Paulistano is excellent, incredible professionals from reception to departure, delicious food, I was very well assisted by neurosurgeon Dr Adil Bachir and Dr Rodrigo during my anterior and posterior lumbar arthrodesis surgery, on the L4, L5 and S1 vertebrae, almost 8 hours, doctors on duty, very human and attentive, wonderful nursing technicians, excellent nurses, excellent and committed physiotherapists, it was an immense joy 1 day after the surgery to get up from the bed and walk around, without any support. My mother waited for my surgery in a room, fully assisted by the staff and nurses, thank you in advance for so much effort and care. Congratulations to everyone involved. The only negative point is the shower, which doesn't heat up very much.

Today I had it at the oncology outpatient unit with an appointment more than 30 days ago. When I got there I found out that it was no longer scheduled. Because my plan, which was Amil, changed on 11/01/23 to Bradesco and they simply didn't send me a confirmation email. In other words, lack of respect and I missed two appointments, one with the oncologist and another with the general surgery team (which has already been rescheduled 4 times since September) Today I was rescheduled for 11/24 by the oncologist and the general surgery team oncology on 12/11. I complained to customer service. What I heard was . I'm sorry ma'am, let's find out what happened. Very inhumane towards cancer patients. And on June 14th of this year, during my first surgery, they lost all my exams from the surgical center back to the room. What I heard from the Surgical Center Manager... I trust my team... This has never happened... In other words, I'm the one who fights behind the exams to continue the treatment. I had to go to the Lavosier and Tecnolab laboratories to request a duplicate of the image exams.

I had knee surgery on 6/24. The service was all polite. They always ask you to arrive two hours before surgery completely fasting. Before the surgery I spent time with nursing, with an anesthesiologist and with my doctor. All facilities clean and well organized.

Doctors unprepared to provide PA care. As it is the only hospital in the city, professionals should have more experience.

Great service with my mother who had surgery, doctor, nurses, cleaning staff all very attentive. Grade 10

We are always very well attended to, we are Unimed customers, the call center has become an extraordinary differentiator, the new hospital facilities are above expectations. Attentive clinical staff concerned with well-being.

Terrible attendance. They ignore patients who need quick care. They keep waiting and don't justify the delay. Even with very few patients to treat. Unprepared nurses don't even know how to apply a serum into a vein. Total disregard! A thousand times Unimed hospital. Even the SUS is much better.

The reception has very good service, I cannot say the same about the service provided by the doctor on duty at this hospital, she is disrespectful towards the patient! I felt that the Doctor didn't know what she was doing, the impression she gave was that my fiancé was a laboratory mouse! At the first consultation he was teased and in the end they prescribed ibuprofen and if the symptoms persisted, he would see a specialist. We went to a specialist, they treated it like sinusitis and even though we were taking very strong medication the fever came back, we went to the emergency room again, he had a fever of 39, the doctor (the same as the first time), again gave terrible care, she couldn't find what He passed the responsibility for returning it to another employee, who recommended more medication for the inflammation, but without knowing why the inflammation didn't go away. I won't mention the doctor's name, but the appointment took place on 10/06/23 at 10:15 pm. I don't know if the hospital will see this comment and do something about it, but even if it doesn't do anything (which is very likely) I want to record here my dissatisfaction with the hospital and the poor service provided. A service where we pay for a private plan, which by the way is not cheap.

As a student, I was always welcomed by hospital professionals, especially for admission to the hospital. However, after some changes at the hospital, there is a DISTURBANCE with students, delaying our entry and jeopardizing our classes at the hospital. I write this evaluation with great regret, as it is a reference hospital, we students expected more respect and not the treatment we are receiving lately. Unfortunate. I can cite two examples that occurred to me recently. First, I had to wait more than 1h30 to enter the hospital and I missed to see a surgery. Second, due to the delay of the reception staff, my group and I had to miss 30 minutes of class!!!

I visited Sta Casa on two occasions as a patient and as a visitor, they provide an excellent service with trained doctors and well-prepared staff, I was well attended to and well treated by both......

Hospital concerned with providing quality care for everyone! Excellent projects will still come to the city that will provide better health for everyone!

Many are good, but in chemotherapy there is a need for more nurses to care for us who are undergoing treatment

I want to thank the entire team who were with me throughout my hospitalization, who welcomed me with so much affection and dedication. This team knew how to help me when I was really bad, they held my hand, and always gave me words of comfort. Unparalleled empathy. Congratulations to everyone and I ask that God gives double everything you gave to us. Kiss in the heart 🥰 I don't remember everyone's name, but it ranged from doctors, nurses day and night, to other sectors, physiotherapists, kitchen maids and cleaning assistants.

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It could be 5! BUT IT'S BEEN A MONTH SINCE MY SON'S RESULTS HAVE NOT BEEN OUT. I DID IT BY REFERRAL FROM THE HEALTH CENTER! THEY SAY THE DOCTOR HAS NOT DONE THE REPORT YET! ONE MONTH? MY SON NEEDS THIS REPORT TO BE ABLE TO GO TO NEURO FOR A DIAGNOSIS. ONE STAR FOR LACK OF RESPECT! Did it in October and so far nothing! I call! I send an SMS. TERRIBLE ABOUT THE DELAY IN THE REPORT RESULTS!

Saturday, November 25th, I was at GRAAC to have an MRI of the lumbar sacral spine, referred by the UBS, I was well received at the reception, attended to at the time the MRI was scheduled, attentive nurse and exam technician; bathrooms and very clean facilities, and after leaving with exam in hand, to my surprise, I even received a snack kit

Very good hospital. service ten. Congratulations to everyone who works at this hospital. very polite staff who care about the lives of patients and respect their companions and relatives 👏👏👏👏👏👏

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Excellent

Huge hospital with many specialties, including non-invasive cardiology, urology, oncology, orthopedics, among others. It is well located in the city of São Paulo, close to Vergueiro station. There are two other hospitals close by, including the BP hospital.

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I have been here several times, but today seems to be the time that this hospital's ER is the least prepared. Having passed through covid season peak now the hospital seems not being able to cope with the current influenza surge. The expected waiting time for a clinic evaluation, not considering possible needed exams or medications is of 4 hours! Seems that there is no medical staff at all right now. However the nursing and administrative staff are whatever possible. Hope somehow they can cope better with this seasonal flu...

I was at the Oswaldo Cruz Vergueiro unit on 11/24/23 at 8 pm. The service was for my mother and it was reasonable, however I witnessed the arrival of a girl with an injury to her head. The family in panic with the girl on their lap. The security guard and triage nurse were so quick that I didn't even see where they came from. The medical team was also quick and I saw the stabilized girl being taken to the upper floors. Of all this, what caused surprise was the apathy of the receptionists. They didn't help at all. Not even the family seeing the issue of documents to open the file. Even the nurse on duty was irritated with the receptionists. There was a lack of empathy, there was a lack of humanity in the service. Reception grade zero. Security and medical team, grade 1000

This hospital it’s unclean and the service are very bad we was waiting over 8 hours just to see the doctor

Hospital increasingly abandoned. Bad mood from reception to service floor. Doctor, thank God, he treats me well. Dr Alexander. So abandoned that there's no one to even pick up the token... 🤦🏻 (3rd floor) Sadly.

It is an excellent hospital, well located and with a wonderful team. We are always very well attended to, they give us quick solutions with zero bureaucracy. I have been a patient for 4 years and the service is always of the same standard. Whenever I feel something or go straight to this hospital 🏥. It has a restaurant, cafes, 24-hour bank and valet.

Considered top level. The prompt service leaves a lot to be desired. I passed on 25/Nov/23. In pain, the medical team only did a urine test. When the doctor came to talk, she had to consult a urologist with my request for medication, as I was in pain. In short, an US or CT scan would solve the problem and be accurate. But I had to go to another hospital to find out. BP Mirante for emergency care is too weak.

IS A PREMIUM?!?! JOKE!! Yesterday I was in the ER and I was outraged by the lack of structure and commitment to the patient. Only 1 attendant to open a form, 1 person doing the triage, 2 doctors attending all Emergency Rooms, patients being placed in common chairs to be medicated, only 1 nursing assistant to apply all the patients' medications and mismatched information. I thought that the fact that Mirante has premium service would never be served in this way. The doctor who attended to me prescribed the same medications I was taking at home, did he think I liked going to the ER for a walk? While I was in the medication room, I asked the person responsible for the PS, and nurse Bruna came to assist me. I informed him what was happening and he immediately took action. He transferred my care to a surgeon to analyze me, transferred me to a private place to receive the new prescribed medications, in short, he did everything possible to make my impression change. The problem is that I wouldn't have needed to complain to receive the service that should have been offered. I was extremely disappointed with BP Mirante, as it was not what I expected for this service.

Clean and sophisticated hospital, sympathic and skilled people and doctors English speaking doctors Very good experience Recommend 100%

Don't go there if you don't have a brazilian plan, they will force you to pay for unnecessary insurance that is 3x the normal price.

Stellar. professional, humaine, attentive, caring and loving. My mother was admitted 3 times and used the hospital almost daily after discharged. From the valet parking to the doctors, cleaning to nursing staff, everyone was efficient albeit friendly.

First-class hospital, very beautiful and organized, not to mention its huge size!!! Top service!

Execelente hospital

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