Congenital skull defect treatment in 6 Neurosurgery clinics in United States

Have been passed around from test to test for 3 months trying to get clearance for surgery without any treatment for my condition. Seems like all they want to do is test and not treat problems. Impossible to contact doctors offices by phone. Ordered tests without telling me. Asked for referral to hand surgeon and they sent me to shoulder specialist. Asked for referral to ear doctor and they sent me to throat doctor. Did multiple tests on heart and all good but they are ordering more tests. Think they are more interested in generating revenue than healthcare

My first bad experience, I have been admitted here several times and my stay had always been good, until today that I already have 6 days admitted with my son here we had a double room where the first nights I was touched by very decent and respectful people, the last two nights I have been touched by a couple with their son who leave the light on until late at night, they spend the day in phone calls and with a very inadequate tone of voice, the husband stays to sleep and has an awful snoring because those that are very difficult For me and my baby to have rest time! I talked to the manager who didn't do anything, I don't talk to people or take the delicacy to even see if she could move us to another room I don't care if it was with another person maybe they weren't as indecent as these which the sick people have told her that please if they can keep their composure and they don't even change! The truth is that I would have liked to have another person to help me and be more condescending with the situation, because I have seen empty rooms since last night even double, but according to the person I spoke they were not available! I'm still here and I can't take a break! As a hospital you need to put some rules like do not let man stay at least in double bedrooms, do not permit loudly noise in the room and for the residents on the rooms to keep respect to others and peaceful space appropriate for recovering!

My sister had surgery at Columbia Presbyterian Hospital. Her surgeon called me at 11:14 to report that she was out of surgery, and that the recovery room staff would be in touch when we could see her. I did not hear from the recovery room, so I called them. The desk clerk rudely told me that the nurse would call. It is now 2:50 - almost 4 hours since my sister left the OR, and I still have not heard a thing from the recovery room nurse. It is inexcusable to treat family members in this way. In addition - they have a one way texting app for communicating with family members - useless, apparently, because they don't use it. I understand nurses can be extremely busy, but it only takes seconds to communicate to worried, waiting loved ones.

My experience with the staff was a very special and good one of course there were a couple of not so greats but as a whole I totally appreciated the experience and staff!

My wife and I welcomed our first child with John Hopskins and we were treated exceptionally. Our stay lasted 6 days. Nearly every member of the staff seemed to truly believe in the work they were doing and it instilled confidence in my wife and I. The student nurses were very helpful and what they may have lacked in experience they made up for in drive and enthusiasm! Two of the nurses, who helped my wife in labour, even visited us the next day to congratulate us and check up on the status of our child. It did get busy for the nurses the last few days and we would love to have seen more lactation specialists on staff available to help us but after this incredible experience I will certainly encourage my wife and other parents to include John Hospkins in future family planning.

We had a very nice experience here. Dr Kuwera and staff took perfect care of our toddler. He was competent, thorough and friendly-explaining everything as he went. It’s a large hospital, but with many helpful staff stations throughout, it’s easy enough to find your way around. Must register before entering, which ensures safety. Very thankful for wonderful healthcare.

Last summer I ended up in the ICU for 6 days with a pulmonary embolism. All the staff were wonderful, especially the nurses who changed my chux pads. Multiple doctors came to talk to me about my options, and I felt reassured that I was in good hands. I was put in a catheter-directed thrombolysis study. My medical team explained the procedure in ways that my oxygen-deprived lungs could understand, and before I knew it I was rushed to the OR. My follow-up care at MGH has been exceptional. I see a cardiologist and hematologist regularly now, but I am grateful to be alive thanks to the wonderful staff at MGH. You all rock!

My wife was operated on 10/19. Our stay from then on and through the weekend was the best hospital experience to date. We especially want to comend the staff. Our nurse Lauren Schmidt was the happiest and most cheerful which flowes right to the patients making us feel great. All the staff was great.

Boston was going to be just a port of call on our cruise, but we had a medical emergency while we were here. We spent some time in a very busy emergency room, but they got us in for surgery within 24 hours. All the medical professionals who helped us were kind and very informative and caring.

We unfortunately had a five night stay at the NICU over the Thanksgiving holiday. The staff provided excellent care to our kid and were extremely compassionate to us as parents. We were grateful for the private sleep rooms and shower, and they even had a free Thanksgiving dinner for everyone. The parent / family lounges have places to grab coffee and store food, and everything is very clean and organized. The doctors and nurses were very communicative and kept us in the loop the entire time.

Absolute terrible service , my child who has a seizure disorder and potential c- diff was made to wait in the ER for 3 and half hours plus without even being properly triaged . She didn’t receive a wrist band , at any point & we can run the cameras back , no one was alerted to her allergies , there was no band received for that as it typically is .. and she begin to have diarrhea thru the long wait due to the virus she’s had the past week and in turn she begin to get worked up and her fever returned . I asked how much longer the wait would be abd for an approximate timeline .. as I’ve observed plenty of patents come in after one in which I knew personally with less servere circumstances… literally come and go and my child was still suffering in the ER … the Nurse on duty was unaccomidating and almost seemingly unwilling to engage .. as I waited for some kind of answer on when my severely sick child would be seen . I asked if it would be more then another 30 mins and he said he couldn’t promise but shouldn’t be . Well it was . After 45 mins of them calling more then 3 patients who arrived after us .. I reluctantly decided it best to take my fevering , baby who now was covered in feces home.. as she was in her 3rd bowel movement and we had difficulty changing her in the nasty public restroom . I ultimately watched them call two more patients who had come after us exhibiting no signs of eminite health scares then I ordered our ride so I could take my child home to change her and give her medicine to help reduce fever and prevent seizure . I am pissed and very upset that my child and I spent. 3 plus hours we can’t get back in the ER after already being across the street at the Berger building for 3 hours prior this was wayy less then pleasant This is the second poor experience in this particular Emergency Dept but this is the first time it was so horribly handled that I had to leave with not only an even sicker baby then I arrived with . She still now will have to go to another ER to be seen .. because she did infact have a seizure once we got home from her fever that arose& I informed them but that did nothing to medicate the situation or get her seen. Now my kid is home fevering still sick potentially has c-diff and I am skeptical to return her to this terrible hospital because they haven’t even returned my call. I called to speak with charge nurse after filing formal complaint and was told by Jennifer in WR I could not speak to any charge nurse and then she took my information and said a nurse on duty would call back and it’s been an hour with out a returned call. This is negligence and unprofessionalism tht promoted us to leave in the first place and CHOP is looking at a pretty decent lawsuit if we do go to another practice and something is severely wrong with my child with so much documented instances of me trying to get her helper seen and have a team leader consult about next steps. This place wasted my time , cash as it’s costed money I didn’t have to travel to and from and I felt like the poor treatment was racially motivated , as as kid who came in after us was pulled to the back cuz her mother told them she was seizing but I was looking at the child. Who literally just had woke out her sleep. This place is incompetent , and of all the amazing experiences we’ve had here . Today ultimately casted a shadow on them all and I will be contacting the PA board of insurance aswell to file a formal complaint because they need to do better on managing and transparency in the ER wait times. We got there at 12:15 and didn’t receive a text saying my child’s room was ready until 4:15 pm that’s 4 freaking hours for a child who had 2 seizures in past week, has a virus, and cold and caught fever while there … when she has a history of febrile seizures … 0/10 would not recommend. Shame on u all

Very friendly staff and amazing doctors. The information desk is very helpful. The front lobby is well designed and honestly fun to be in due to it's design: there is a meandering ramp that goes up several stories with interesting interactive stops on the way. The lobbies on each floor are also all well laid out: they have great views outside and inside were designed with children and comfort in mind. The plaza out front and the cafeteria/Cafe are both relaxing places to recharge.

My brother was in this hospital because he had appendicitis and had to get surgery and He said the nurse was nice! I think this place is really nice because it's clean and Its nice looking, I know that because I was there to visit him in the hospital. I also want to thank you for saving my Brother before more consequences happened to him and that he could've died.. but thank God this hospital was there! Once again, thank you for saving him🙏🤍 Also I definitely Recommend this place if you want nice doctors and want to feel less anxious and comfortable here.👍

This hospital isn't what it used to be! It seems to be loosing patient focus and fast. We've been a CHLA family for 11 years and I think it's time to switch. My autistic son was SCHEDULED for Dental Surgery. Originally it was supposed to be at 1pm and us be here at 11am. When we got the call from the nurse last night that we needed to be here at 530 AM we were like no one told us! But we got here right on time. We'll let me tell you that they took him upstairs to Surgery PreOp it took over 4 hours to get him into the the surgery room, because he needed to be admitted after surgery and no beds were available. This hospital needs to have better planning for these types of things OBVIOUSLY there will be emergencies that come in over night THAT SHOULD'VE ALREADY BEEN ACCOUNTED FOR!!! Maybe you need more staff and more beds!!! Because to have a child basically starving because you couldn't plan Accordingly is just plainly ridiculous! Then when I spoke to the Charge Nurse in the Surgery Dept she tells me that if my autistic son has an outburst that the anesthesiologist and nurse are there to help give him something to calm down. So basically if my son has an autistic outburst they will just drug him up. I'm like realistically drugging my son just to calm him down because your hospital didn't plan accordingly is uncalled for and unnecessary! Again I am seriously contemplating switching hospitals even though my son is on the Heart Transplant List!!! -A Frustrated Autistic Heart Mom

Ok so I had open heart surgery 20 years ago. I was well cared for and was in icu for three days and then went to a step down room where I was later discharged home after only three days at the hospital. My team was so amazing and so supportive and loving. And a picture of me twenty years later.

Got first-rate care, had a great experience and a positive outcome! Kudos to the Nurses, Doctors/Surgeons/Anasthesioligists, Physical Therapists, Dieticians/ Food Service, Fellows, Interns and Students.Special shout-out to my postoperative caregiver- Karina Valentine. She kept me going through the most challenging part of my surgical journey- enduring procedures to facilitate the OUT in outpatient. Lest we forget the unsung heroes that keep the hospital so hygienically safe and superior- I must now sing my praises to the custodial technicians: 🎶We could eat off of the floors But we don’t have to They give plates and forks Don’t spill dessert (I got strawberry shortcake 🍰)

Duke has reached a new low in Health Care. I'd give them stars in the minus categories if I could. My son had eye surgery and every time we went for an appointment we waited over 2 hours to be seen. I can tell you I read 150 pages of a book on one visit. We actually saw people leave without being seen because they had waited so long. My son objected to the long wait one day and was told by the surgeon that he was ruining her day. Because of the wait he asked to talk to the manager or an administrator. While waiting the police came made him leave because they said he raised his voice. He was not allowed to talk to the administrator and was escorted out. This is not the first problem we have had with Duke. My son was in the emergency room waiting for the specialist on call when the Emergency Doctor came in and told him that the specialist on call was already home and refused to come in to see him. We were told he should go to the specialist's off the next day. We did that and he was seen for less than 10 minutes and told to go back to another doctor. Seems the specialist could have cut through the chase and just told us that to begin with. My impression is that almost every one in the hospital system is very impressed with themselves and seems to think it below them to interface and deal with patient who have some real problems. I can, in no way, recommend any Duke Service. I could continue with examples but it would sound repetitive. I practiced Nursing for 45 years and never came up against any care that is this poor in quality. Giving them -5.

There is good and bad. I recently gave birth at Duke University Hospital and I want to say that my experience with Doctor Clifford, and nurses Lexi, Brenna, Tabitha, Josephine among others was phenomenal. I was blown away by the care and compassion I received so I will say it was a four star experience. However, I have one major complaint about the experience and feel it's important enough to try to voice it. The postnatal recovery rooms are terrible. They are the size of walk in closets and if you have a support person such as your husband staying with you, they have to sleep on what is essentially an airplane chair. My husband could not do it, and it made the end of my experience at Duke hard because I needed him there with me. I felt like me and my baby were locked in a cell and I was going crazy by the time I was discharged. Thank god I was discharged early. There were many people coming in and out of my closet those last few days and nights, and it was definitely too many people. After receiving an emergency C section, I felt I was improperly educated on the repercussions. I had no idea I would have trouble producing milk after my blood loss in surgery and I was not informed about any of the medication I was prescribed. Again, it would have helped if my husband could have been there because maybe I actually was given information but was too out of it for it to sink in.

I had a great experience at Pam. As a patient there I was paralyzed from my belly button down and the care and respect I recieved was tremendous. I left Pam with my wounds healed and ready for rehabilitation such a great team thanks Pam!!!!

If I could give no stars I would this place is absolutely horrendous. My husband is paralyzed and they leave him in his bed no attempts at physical therapy nothing to actually care for him. They did a Foley catheter because it was too inconvenient to do his straight catheter. They leave him ignored at the end of a hallway. The environment is dark and dingy. The parking is a whole other issue on its own. It takes 20/30 minutes for him to be attended to after pushing his call button. They shouldn’t be accepting patients who they aren’t equipped to care for

My father is currently residing here after a biopsy gone wrong and over a month in a coma at the ICU. After a rough experience in the ICU, this place is like a breath of fresh air. Consistent care, kind staff and a willingness and eagerness to heal. Mariana especially is one of the most amazing healthcare staff I have ever met.

Absolutely horrible place I do not recommend sending your loved ones here. Before my dad passed we sent him there in hopes that they would take care of him and treat him well because he was very very ill to the point of needing 24/7 care. But, we were terribly wrong the rooms were absolutely disgusting and not being cleaned even the chairs had so much build up I had to deep clean them and the room. The bed they had him in as well was gross and sticky. I unfortunately had to do their job and clean his room everyday. I unfortunately had to also monitor his colostomy bag because they would let it get so full that when they would finally clean when i asked that it overflowed and spilled on the floor. I had help them clean it up because they left it for hours and took them and hour and a half just to get the bag in the first place after i asked them to remove the old filled one with a clean new one. The list goes on unfortunately. In his stay there he also got bed sores i would ask them to help move him often and put pillows under him so that he wouldn’t get bed sores and they never did. The hospital he was at before this was osu. Every hour or two like clockwork osu’s staff would turn him and put pillows under him so he wouldn’t. PAM failed to do this even when I asked especially when I would leave they slacked at taking care of him. I had to move him myself some so that he wouldn’t be uncomfortable. He was in the hospital for months unfortunately and later passed. I’m here 4 months later after his passing to share this because I don’t want this to happen to anyone again. My father didn’t deserve to be treated the way he was at PAM especially being a veteran that served for our country.

They took excellent care of my momma! In a time when time was critical the staff was very quick with their response time. My momma was able to return to her home in a very reasonable amount of time. With out the care and dedication of the staff here she would not be back home with us.

My husbands best friend has been in the Pam Unit for 2 months. Not once was the room cleaned. Floors were so dirty. They would leave their trash laying in the room and on his bed. There was one RN nurse who was meanest uncaring person I have ever seen! They have now moved him to a nursing facility over 4 1/2 hours away that has awful reviews. It is so sad how people treat sick patients 👎🏻 they don’t even deserve a 1 star

DO NOT BRING YOUR FAMILY MEMBER HERE!! If I can give this place 0 or negative I would. This guy named James is a liar, and this lady Rose will not listen to you and dismiss you! Was on hold for more than 20 minutes, since my brother didn't receive his dinner. This guy named James put us on hold and confirmed that the patient finished his dinner but did not record it, 2 CNAs couldnt remember what food was served or what the patient ate. Spoke with the visitor that was there and confirmed that there were no food. This lady named Rose, who is the charge nurse after answering the phone told us (without listening what we have to say), that she just gave him a sandwich and some fruits. Mainly to shut us up.. Why did they lie to us and confirmed just to get us off the phone??? They didn't even apologize. If they lie on this little thing, makes me wonder what else they could be lying. This place needs to be closed down or need to replace all the incompetent staff.

My dad has been at PAM's for a little over 2 months and is set to transfer in the next few days. This facility is AMAZING, and my family and I are blessed to have had my dad here. He had a stroke after having a double bypass surgery with 2 valves replaced and was transferred to PAM's. This facility has treated him and us like family and truly taken care of him as if he were their own dad, brother, or uncle. PAM's is extremely clean and has tons of staff that are willing to help! My dad is my world, and it was extremely scary when trying to choose a facility for him to be moved to, and if PAM's is a choice, choose it!!! Some of the AMAZING staff members: Case manager: Marc Director of Rehab: Natalia Speech therapy: Genevieve Hannah Occupational therapy: Ceci Diane Brian Physical therapy: Maritta Kim Mike Respiratory therapy: Ray Lauren Wound care: Johnathon Katie Gentiva Sylvia Nurses: Rosa Ebony Mario Cayts Kelsey CNA: Cherry Yvonne Fernando Veronica Steven (Night shift) Each one of these people went above and beyond while taking care of my dad! I can't say thank you enough and am truly blessed to have met you all! Thank you all for making PAM's a second home!

This place is an absolute nightmare. One person stood out above the rest and that was Ronnie the CNA. Holly the chief of nursing is a joke and only gives false sense of security but she doesn’t follow through. Most of the nurses are nice, some of the CNAs are helpful. There is absolutely no communication with staff. When you bring up concerns they are brushed under the rug. If you ask a question no one has the answer and they point blame to the next. They bring people in here to die here. Illegal things happen in your loved ones rooms, and the so called chief of nursing is aware. If your loved one is a respiratory patient and on oxygen or a ventilator I suggest you move them to another hospital and fast. I highly suggest if you have family in this hospital you need to be there at all times and keep a close eye on everything they do. They don’t actually care about the patients or the families, they care about the money. Even the staff have made comments that it’s all about the money to this place. Absolute disgrace to the medical community and the sick patients who need actual care and kindness. Ronnie keep doing what you are doing, you are an absolute angel and do not let these people change you. We need more people like you in the world!

Im a true believer that we are all captains of our own ship. Life is what you make of it. However some circumstances are influenced by others. I was really worried when the doctors at Carolina East suggested that my brother who had been on a ventilator for 16 days and critically ill be transferred to PAM in Rocky Mt NC. Reading reviews only scared me more. However nothing there was working and he was slowly dying. After much prayer and research we ultimately made the best decision of his life. Only after 4 days he is eating and walking. A total miracle. When we first got here I was a little skeptic. Everything seemed old school and I wasn’t sure if I had made the right decision. But within hours I felt so comfortable confident and at ease. These people are so nice and caring. Like every hospital they have some that aren’t as good as others but for the most part we have not had a problem yet. The doctors and therapy teams are absolutely amazing. This is the first facility that encourages family members participation. They provide a place to sleep with your love one and meals all at no cost to the family.A shower and private bathroom was in our room for our convenience. My brother has been sick for over a month and for the first time I am hopeful. Thank you PAM y’all have been awesome 👏 😊🥰

My brother received excellent care last month. He was only there for about two or three weeks but the care and overall service he got was exceptional. During dinner time, we were offered dinner (which was delicious). His Second Floor nurses not only attended to his physical care but addressed his overall well-being too. This was instrumental at how fast he got better. Thank y'all again for taking such good care of him.

From the minute the referral was made until the successful discharge, the PAM facility and staff exceeded my expectations. I have been a nurse for over thirty years and this has been the best experience I have ever seen/had at a facility. Patient placement at PAM was the right decision. I would highly recommend it!

Our loved one was at PAM in Sarasota for over a month in respiratory rehab. The entire team was excellent. They were professional and compassionate. The environment was clean and welcoming to visitors. By the time my parent was discharged we knew a lot of staff by name and had gotten to know some of the staff through their friendly conversation. I understand that every person's experience in this type of setting will be different, but my family highly recommends this facility based on our shared experiences there.

A friend of mine recomended PAM hospital for my son who was in ICU for a week and needed an additional treatment and monitoring of his condition. From his admittion to his discharge, our experience at PAM was excellent. Staff members are professional, kind and caring. It was easy to obtain info and speak with my son's doctors, nurces and case workers. Everybody showed a great deal of concern for the well being of my son, and we both felt that he was safe and in good hands there. Everyone, without exception, was helpful and treated us with understanding, compassion and respect. In addition, my son's room was always clean and sanitised. Thank you all for your hard work and dedication to your profession, patients and their families.

I was in a coma and on a ventilator due to Covid at Sarasota Memorial last year from January 2022 until the end of March. I was transferred to PAM, where I woke up and recovered for about a month. I felt very blessed to have those on the staff there taking care of me during that life-changing event. I have gone from deaths door and not being able to talk or walk to being fully functional and back at work for over a year now. Thanks again for doing a great job!

My daughter, Katherine, was in a severe car accident in our home state of Arkansas. She was airlifted to OCHSNER LSU and then after she was stable she was moved to PAM. She had a severe brain injur, both wrists were broken, her left knee messed up. She had a feedingtube and a traciautomy even though she could breathe on her own her oxygen levels had to be monitored. The staff was very kind compassionate to us. Constantly telling us not to give up hope. We were there from October of 2022 to January of 2023. I was able to stay with my daughter overnight. I can't possibly name everyone on staff that helped us. Cheri, was wonderful in helping getting all of my daughters paperwork for her transfer to TIRR in Houston. I didn't have to worry about filling out anything, she took care of everything. The physical therapists were wonderful. Even though she really couldn't do anything they worked her muscles just about every day. Julie, Jessica, & Betty y'all are just awesome. And the nurses and nurses aids. You ladies & gentleman have all my thanks and respect. Y'all helped me as much as you took care of Katherine. Wound care y'all were awesome. The doctors that came were kind and understanding. The respiratory ladies & gentleman were wonderful. The janitorial staff were excellent, her room was cleaned everyday . I just can't thank you all enough. Y'all explained things to us and I received a mini nursing education that helped on our next journey. We were in Houston till April of 2023. Now we are home and she is walking and talking. We are truly blessed with the care & kindness we received at this facility. I thank and love them all.

This place is HORRIBLE!!!! Half the nurses & staff are horrible & just there for a PAYCHECK not because they care and have a passion for what they do!!!!! My mother was at this facility and let me just say she's worse today than she was when she went in. Observed one nurse on fb, another watching a movie, and the other one texting on her phone. When did the state board of nursing start allowing these things to go on in a facility?? Room was dirty and half way cleaned!!!! Can't tell you how many times the call light was pressed and it took them 30-45 mins to come see what was going on. My mother fell twice out of the bed. Run if you are even considering this horrible place for your loved ones. I didn't even want to give them a 1 star because they deserve a negative !!!!!!!

This place is awful understaffed and most of of staff are under qualified they were a few good ones my husband was in diapers and I could not get him changed he got blisters on his lower half I started trying to get him changed at 6:15 went to the nurses station at 7:00 after call 4 times and finally at 7:45 they came to change him and treat his blisters which made me decide to post. I was taking him outside at the hospital which help his mind after a liver transplant and I could not get anyone to help me get him in a wheelchair here. I would not leave my dog here