Hurler syndrome treatment in 388 Oncology clinics worldwide

Good afternoon!! My name is Taynara, and I was admitted to the unit on 11/3/2023... with severe headaches and vomiting, and was soon sent for exams and measurements. I was immediately taken to the ICU, with full medical supervision from Dr Giuliano and his emergency team. On the 4th (Saturday), after more tests, a tumor was seen requiring surgery, which was carried out last Thursday, 11/24. The surgery was a success, the entire tumor was removed without any further complications. Today Monday, 11/27, I left the ICU and am recovering in the room. I would first like to thank God for the entire process, and for the Dona Helena team... from the nurses in the emergency, ICU and maternity ward. Thank you for all the love and care, to everyone I had the pleasure of meeting, they made this struggle easier, they all brought me a lot of confidence and serenity. Thanks mainly to Dr Giuliano, for all his professionalism and clarity. By ICU Techniques morning and afternoon (Karina, Karen, Carol, Larissa, Paula, Ângela, Anderson, Roberto) Amanda for all the braids in her hair before and even after cutting her hair for the surgery she took great care to wash , hydrate and make everything feel lighter after surgery. Night technicians and on-call technicians, physiotherapists Rose, Milena and Najara. The maternity nurses, technicians, kitchen maids and the entire team!! Thank you very much, and may God bless each one of you greatly!!!

I've been with my grandmother at HDH twice in the last 30 days. The first time on October 21st in orthopedics, service provided by the doctor Barbara Miroski de Oliveira Pinto. The second appointment was today, a clinical appointment by doctor Murilo Melocra. In both appointments, the doctors were very clear, detailed and were excellent in their consultations. Even though consultations were carried out in the emergency room, the service was very complete and all possible information was provided. Service at reception and screening was also very good and courteous.

On Saturday, 02/08, my wife and I were admitted to the hospital through the emergency ward. We needed obstetric care. The reception was perfect. The nurses were amazing. The doctor who carried out the first assessment did well. But everything fell apart when they told us that there was NO doctor responsible for ultrasounds at the hospital, they were on alert. This specific doctor was supposed to be at the beach, as it took him over an hour to arrive. When he attended to my wife, he treated it as if it were nothing. A cretin. In a moment of total fragility. Irresponsibility on the part of the hospital for not having a team on duty (probably to save a few bucks) and the doctor is certainly from that new generation who only thinks about fundraising. Ultrasound care was vital for us, regardless of whether it changed the result or not. We just wanted an answer. The doctor (whose name I will refrain from mentioning here, but you will find out from the ombudsman) came in, gave the diagnosis and simply left. He left the rest to the other doctor who attended to us first (very well) and to the nurses. There's no point in having a hospital that prides itself on having whatever it is, with each professional identified by the color of their uniform and having emergency medical care that is rubbish. Ridiculous. Unfortunate for a hospital that was once a reference in the region. As for the doctor, I wish him no harm. I just want life to give him the same treatment he gives his patients. And I say this from the heart because there is time to change and be better.

This hospital is terrible!!!! I had an ear problem last month and I went to this hospital that charged me for a consultation without first telling me that they did NOT have an ENT doctor available who could help me (even after having gone through the screening), and now even having spoken to the ombudsman, they claim that I was notified, which is an absurd lie. What I take away from this is that in addition to having terrible service and incompetent nurses, they also lie. Don't go to Santa Paula, they won't solve your problem, and then they will claim that “you were too stunned to understand” which is an absurd lack of empathy and humanity for a hospital to say something like that.

Second time this week I spent this week in the emergency room of this hospital, because the medicines prescribed by the doctors are not relieving my pain, I have flu-like symptoms. I haven't slept almost at all this week and today in particular, I stayed up all night feeling a lot of pain. It is not possible that I will have to go to the emergency room for the third time. If I go, it won't be in this hospital. Update: I went to the emergency room for the third time this week, but in another hospital, I was howling in pain, I knew something was wrong, as I was feeling very ill and didn't get better with any prescribed medication. I was diagnosed with sinusitis in another hospital, I remember that the last doctor at this hospital said it was nothing serious and didn't even give me an antibiotic and said it was influenza. They gave me nausea dosage in the amount for a child and not for an adult and in a greater number of hours. I no longer trust this hospital and will not return again.

Good afternoon everybody. My 18 year old daughter was hospitalized on 10/06 with teratomas on her ovary. A huge scare, because we went to the emergency room with suspected kidney stones. We were very scared and very worried, but I would like to record here the excellent and extremely humanized care provided by everyone, without exception, at the hospital. My daughter had recently turned 18 and so I couldn't sleep with her in the hospital, imagine my despair and worry? So, in addition to never being hospitalized, she had to be alone. But, all (without exception) the nurses, receptionists, doctors, were very careful, loving, attentive and caring. I would really like to remember everyone's name (and I recommend that the hospital look at the days of this shift to really recognize these professionals from 10/05 to 11:20 pm to 10/08), but I was very nervous, but, I remember Carol, Kelly, Luana (in the emergency room), Dr Manoel and the team that successfully performed the surgery to remove the teratomas on my daughter. Those whose names I don't remember (especially a nurse who attended to us in the early hours of 10/06 who was so loving), please forgive me, they are no less important in my gratitude, as I said to some of you, for For me, it is not simply a profession but rather a gift of caring for others. I couldn't spend 24 hours with my daughter in the 3 days she was there, but I'm sure that God chose all the people who took care of her correctly. Congratulations to the hospital, which recognizes its team and always values ​​the people who work there. I also mention the cleanliness of the hospital and the rooms, which are cleaned constantly. My daughter continues to recover very well. I am grateful for Dr. Manoel's assertive clarifications, which left us calm and confident as my daughter continued. I noticed that all medications, all procedures that were performed, were calmly explained to her, eye to eye, realizing whether she was understanding or not. Thank you all very much, may God bless you always.

One word: GRATITUDE!!! I have gratitude, a feeling of recognition. I want to thank you for EVERYTHING. Receptionists, Doctors, Nurses, Cleaning Assistants, Cafeteria, Physiotherapists, Radiologists, everyone in general who gave and is giving us support in a difficult phase, which makes it a little lighter...... GOD BLESS THEM, ALWAYS.

Apart from the reasonable delay for the first pain medication (renal colic) and the first nurse who pierced my arm 3 times (skinny with bulging veins) until she was able to access it), the service was good, everything else.

I would like to thank all the staff at Hospital São Lucas for their service and care. I arrived with what seemed like a simple cough and had to be hospitalized. I am extremely grateful to Dr.Thiago Soares Gomes for his diligence and prevention in decision-making, and to Dr.Filipe Miranda Bernardes for his constant monitoring. When an X-ray was not enough to detect the true cause of that cough, they did their best to clarify the picture so that today I am better and continue with the necessary care. Know that my family, people who love me and I greatly appreciate the professionalism and so much humanity of all of you.

Great people ,great profesionalism, all my respect !

This hospital was a huge letdown. My aunty had a major brain surgery here on September 13th, but things went downhill from there. She was moved to a normal ward after 24hrs. They completely failed on monitoring her reoccurring symptoms like vomiting and headache on September 16th. Sadly, my aunty passed away due to their poor care. The doctors and nurses were absolutely useless and couldn't even figure out what went wrong. Plus, the staff wasn't polite at all. It's just really disappointing!

A wonderful hospital and a wonderful medical staff, nice and smiling, and they have the best doctors. Their services are great and I felt like I was in a hotel.

We were very satisfied, especially Ms. Zuleykha at the reception was very interested in us, thank you very much.

From the first minute of your stay, there is no trust that they are helping you! All they need is to get into your wallet! The chiropractor on the next street is more helpful than this staff! A broken finger, they just bandaged it and let it go barefoot!! Without providing shoe covers! They don't have shoe covers!!! For the entrance-70man Doctor's examination-50man X-ray (although I gave them a snapshot of the fracture) -50 man 170 man for what ??? For bandaging ??? For such medical service?? 😡😡😡💔

Super 😍

Behruz doctor, our trusted implantologist family doctor number 1 in Gence. The dental office is equipped with dental equipment according to world standards. Thank you doctor!!!

I was so excited that I even had surgery here

Very nice

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good hospital, doctors and nurses are friendly

Terrible experience at HerzKlinik Hirslanden Zurich with Dr. Georg Noll.Any questions that my partner asked him were arrogantly dismissed. Rude doctor with bad communication, clueless on what was happening with test results and was very confused about the results and did not know what was happening.Whole experience really poor!We are not sure if we will ever get over this disastrous experience.We would not even give a single star to this doctor.

The Sports clinic in Hirslanden is absolutely great! Great staff and great doctors, special thanks to Dr Inauen for his expertise and reassurance. However, the emergency department is really horrible and should be avoided. Although the nurses are very nice and helpful, the neurologist who came to see me was very aggressive and rude and told me that the tinnitus I have is psycho somatic, which turns out is completely false!

Great Hospital, very well-organized nursing system. Special thanks to Dr. Dennler (the surgeon) who made my dream come true. i am now walking like normal people! Thank you Hirslanden Klinic.

staff is very friendly, everything is kept clean and sanitary. the nurses care about their patients and everything is done quickly. when we first checked how long the waiting period will be, it said 3 to 5 months, my gp sent a mail, agreeing to the waiting period, and around week later i got a letter with my appointment scheduled for 3 weeks later. very happy with all the help and support i got from the staff!

doctor and staff were friendly, best hospital in North Brabant

The staff is really friendly and can speak English very fluently. Appointments are on time. I really like hospital environment. It’s very clean and tidy.

I don't know what you did. Dr. House film series... have you seen this? I had it live. You did wonders. My son is alive. I am grateful to you for the rest of my life. Thank you.

Leiden is famous for outstanding education institutions with legacy of scholars in different fields.This medical college is famous for its standards and atmosphere. The resounding aura of nature and botanical garden makes it more vibrant.

In 2021 I have give birth in this hospital. I had a horrible and traumatic experience, the staff member were not professional at all, lack of communication, 0 empathy, after 2 years I am still recovering because the experience was so traumatic. I ended with emergency C-section and total anestesy, the midwife was not comunicating with me, telling me what she is doing, nurses were always having bad attitude when I was saying I am in pain, they were like: other patients are also in pain! Also no lactation consultat was available, even though when we discussed on the phone they lied that the consultant was there. No help with lactation, because of them my baby starved for 2 day, I didn't knew how to latch and received 0 help. Basic help was not provided, my husband was helping me changing the sheets when it was too much blood, also my husband was changind the baby and everything else. When the nurse was coming they were bothered that we are disturbing them. If you have another option for giving birth, please Don,t choose this hospital. Not sure if I had this experience because I am an expat and I don't speak English, but anyhow I still have nightmares and treating the ptsd, not that they even cared to check-up on me or provide any help postpartum, so I was on my own.

Absolutely horrible service. My father broke his arm and we had to wait like 10-15 minutes just checking in. And then they gave him a terrible cast and diagnosis. We had to come back to the US and go to our local Kaiser Permanente to get actual care for my dad. Please avoid this place, especially if you are visiting from the US. Por favor, nunca buscas ayuda aquí, especialmente si vienes extranjero de los Estados Unidos.

We have used the services of Valmar Hospital, including surgery and emergency care. Could not ask for better service and care. Having so many specialists at one location is so helpful. Received excellent care from Doctors , nurses and staff.

Horrible service. Showed up here with a case of Food Poisoning and was turned away because my symptoms were "similar" to Covid-19. The front desk person told me to wait outside, didn't even ask me simple questions such as if I had a cough or shortness of breath and after "speaking with her supervisor" told me I had to go to the General Hospital because Velmar was "full". Such a lie! If it was full, why wasn't I turned away when I first showed up? I went to Clinica San Fernando after and was seen by a great doctor there. My cardiologist and urologist have their offices at Velmar and I will let them know I won't be able to attend our appointments anymore at this hospital, because they deny service to people in need.

I went to this clinic for an emergency case and an ent (ear, nose and throat) doctor saw my ear and gave me an ear drop with a nose one. The staff was very friendly and helped me with English speaking. They even have the registration form in different languages. Great.

1. Nobody speaks English in the Information 2. They send me to have a corona rapid test to a apotheke/pharmacy a few meters away, while I was hurting 3. The doctor didn’t check my breathing, my heart pulses, my blood and yet he diagnosed me and gave me pills Well guess what happened after 3! I had to go again to another hospital because I was not able to breathe properly! The hospital must be shut down and this doctor needs to get fired! Thank you for your non-existence services!

The most unruled and random hospital in bremen you will wait long time and after that they will tell you all doctors are busy come next time and they also lost my documents and insurance they told me we cant find your papers and i just come today and i give my papers today how they lost it i really don’t understand.. i waited a long time till now they didn’t get my all documents that they already took it’s really bad hospital!!! 0 RATING NOT EVEN 1

Amazing emergency department for children. We came in with my 6year old boy. They helped us straight away and were extremely friendly. Thank you so much for the good service 🙏🙏🙏❤️❤️❤️💪💪

I am very pleased with the care I've been given at Emek Hospital. The staff are top caliber.

This is a sensitive topic but I feel a strong need to let everyone know that there are still good people out there. I want to thank dr tina, an anesthesiologist at the emek hospital. About a month ago I tried to end my life. It was late in the evening, she wasn't on duty and she saw that something was wrong with me. She approached me and asked if I needed help. For hours she listened to me, gave me advice on how to move on and how to see the future of my life in a different light. In today's reality it is difficult to find people who will give of their free time to help others in need without receiving anything in return. Dear dr tina, if you remember me, I thank you for the attention and time you gave me, for making me understand that there is a way to deal with problems without running away from them. You are an amazing person! She is definitely an excellent person and deserves the best the world has to offer. The emek hospital, you have won a doctor who is literally an asset. I would like to ask the relevant parties to thank her for her humanity and kindness.

I went to the hospital’s emergency during the night just before Good Friday, after having a terrible food poison. The team helped me a lot! They all spoke English, were super comprehensive, and took good care of me. I really recommend the place to foreigners in case you have an emergency like mine 🍀

After my horrendous experiences in Brno's hospitals, this came as a goldmine. I was hospitalized due to gas leak in my apartment, so they gave me oxygen and there were some other procedures. The doctor spoke English well, the nurses did not speak very well but tried their best. They were very nice, smiling, helpful. I am forever thankful

I’d compromised my wrist month ago and it got worse when I fell down few days ago playing football and went to the hospital “Pod Marjankou” got served there made an X-Ray and there I’ve been told to go to the “Nemocnice Motol”, I thought the doctor said I need to go to any emergency to make a surgery. And decided to go the this “hospital” – surgery department building A8 and there I met the nurse that told that even I’ve been sent to another hospital they can paste my paste wrist back. Eventually, after 5 minutes analysing my X-Ray snapshot results they invite me in and told that finally I ned to go to another hospital. I’m okay if the explain me they policy or bureaucracy but instead, they were rudely yelling at me, that I didn’t need to go the hospital a whole month so I can tolerate another 3 days, because today they cannot fix my worrit wrist. These doctors are amoral, incompetent. They given an gippocratic oath that they didn’t fulfilled. They are just shame of Czech medicine.

I wasn't going to write a review (I'm so over all this), but I feel compelled to after reading a review that was extremely similar to what I experienced here for COVID-19 treatment. I tested COVID-positive on January 3rd and started Paxlovid. I saw my neighborhood doctor on January 4th. I am vaccinated (and boosted) but am at high risk with asthma. I was given steroids and breathing medicine. I was instructed to go to the hospital if I got worse. I got worse. The following evening, my oxygen dropped below 80. Scared, I called an ambulance and requested to be taken to this hospital as it was supposed to be the best. They took my oxygen in the ambulance and immediately gave me oxygen. I was on oxygen the whole time in the ambulance. I was taken off oxygen when I arrived as my saturation reached the high 90s. I requested the antiviral remdesivir. The doctor refused to give me the medicine. I explained how my condition worsened despite days on Paxlovid, steroid injections, oral steroids, bronchodilators, and rescue inhalers. He could not have cared less. I requested to leave as the doctor was not going to treat me (he charged me, though). The doctor told me there were other ID specialists. I requested to speak to one of them, and the doctor left. While waiting, someone else came in and said there were no other ID specialists there, so I paid and left. It should be noted my saturation had fallen to 92% by that time. I struggled at home with symptoms for the next few days. I continued testing positive after completing Paxlovid. My condition worsened, and I returned to the neighboring doctor about a week after leaving the hospital. Still symptomatic and COVID-positive, he examined me and found pneumonia. My labs were also abnormal, showing evidence I had developed blood clots due to COVID-19. He prescribed medicine for pneumonia and clots (which worked). All this could have been prevented. Trying to get my medical records from this hospital afterwords (for insurance) was like pulling teeth. It took forever to get my records, and when I finally did, I was shocked. The doctor noted that I said things I never did. My signature was forged on the documents. Worst hospital experience ever. Very expensive and received no treatment. The administration is a nightmare as well. Avoid it if possible.

We have been living In 3 different countries for the past 9 years, never experienced anything as bad. We have a a top insurance but they “suddenly” only excepts credit card payment. Stayed for additional 5 hours because they did not let’s leave. No one speaks English except the doctors. However, doctors are very competent and reason for not one but two stars.

Absurdly (like, for real) expensive for a very mediocre level of service. I went to the urgency center, and i found it very useless that on every stage (reception, triage, first and second doctor) they asked me the same questions. The doctor took more than half an hour to arrive. The receptionist has misinformed me and I did a very expensive (since I’m traveling abroad) call which wasn’t necessary at that moment. Also, several times there were several people coming in at a time, also unnecessary, certainly didn’t create a feeling of comfort. The room in which I was attended was small and the door was never closed.

My experiences there have consistently been the worst, primarily due to the limited English-speaking staff. I would strongly advise against recommending this hospital to anyone. It's incredibly frustrating to receive appointments scheduled months in advance at 9:30 AM, only to still be waiting for an examination at 1 PM. This is, in my opinion, the worst hospital to visit.

I participated in my daughter's labor. I say that I participated, because I was not there as a spectator, but being an active part of the labor. I didn't give birth to my daughter, I didn't feel the labor pains, my body is still intact and strong. My wife suffered and went to her physical limit to bring our little seed into this world. But I was there, in her every contraction, I was there in every sigh of pain, I was there holding her in my arms and living in our moment, taking care of my family and being the strength and support for my loved one. It was 14 hours of labor, it was exhausting and suffering, but it was also beautiful, magical, poetic, it was our moment, where our connection was strengthened even more. My heart is filled with the most beautiful emotions every time I remember that moment. St Joseph Krankenhaus, I have no words to describe this amazing hospital, I can't think of a better place for us to experience all of this. The midwives, the nurses, the doctors, the pediatricians, how much sensitivity and respect for us, for our moment. They were a fundamental part of all of this, I can only thank them. The "birth ritual" conducted by the midwives was the dance of life, the path of light for our Sementinha. And where some people see suffering, I see beauty, the beauty of giving birth to the beauty of life.

Our heartfelt gratitude to the exceptional staff at the hospital. The care and support my wife received during childbirth were beyond compare. The medical team was skilled, compassionate, and attentive, making us feel safe and at ease. The facility was clean and well-equipped, ensuring a smooth delivery. This joyous occasion was made even more memorable by the hospital's outstanding care. Thank you for an unforgettable experience! ⭐⭐⭐⭐⭐

Excellent nursing team, I had problems on a few occasions releasing the medication (bureaucratic part), but something punctual. The team was very attentive and dedicated to the patient. Very happy to recognize the quality and exceptional service of the entire team.

Great service, especially from the receptionists and customer service assistant. I didn't really like the hematologist's care, but everything else was very good.

I gave priority to starting treatment at the clinic, on the recommendation of an incredible doctor. I was received very well by Dr. Clarissa and Dr. Liliana who are accompanying me in this process, but the reception team, appointments, among others, do not have the same desire to help, I believe that they are not strongly aligned with the purpose of the institution, there is no point in having welcoming doctors and the other sectors are involved in the process . Immediately they need to go through a recycling, the clinic has to be a welcoming and harmonious place.

Do not go here if you don't speak French. And also if you don't like being made fun of by the staff. They're not nice folks.

Barely any staff spoke english, some were even annoyed when we mentioned we only spoke english. Waited for 3 hours in the emergency department only to be sent somewhere else. Don‘t bother!

We visited Emergency of this hospital. As we don’t speak French we were treated like prisoners. Hospital staff including doctors pretended like they don’t understand us. My wife came from a different hospital where she was initially admitted but only received very basic care because this one is accepted by our insurance. Despite having severe abdominal pain she was told that she will not be given any attention and she must go back to the original hospital. Doctor Jessica Franchitti was extremely rude to my wife and shouted to her to leave. Nobody ever treated us this way, especially in hospital. We had no choice but to leave and spend a day in a hotel hoping that the abdominal pain will get better. After we got back home my wife was immediately accepted to hospital to do hernia surgery.

Efficient, quick & useful

One of the worst hospitals in the country. I went here for some blood tests and came out of the office with two broken veins because the nurse was determined to draw blood at any cost regardless of the severe dehydration that I was going through. Fast forward to the week after, I went back to get the results ( you need to go there in person because there's no such thing as getting them via e-mail in 2023!!!!!) I wanted to have a chat with the doctor who saw me thinking that she's going to explain what the results actually mean so that I can take approximate action. Because she wanted to keep the diagnosis a secret from me and talk to my mother this doctor refused to explain my results to me hinting that ' this particular test wasn't within normal limits'. I eventually managed to get my mother out of the office and asked the doctor for clarification and she refused to say a word. I keep wondering what happened to patient confidentiality?! . In the end I would say if you want to know exactly where you stand health wise do not and l mean do not visit this place. Another thing worth mentioning is that in the midst of a pandemic there is no mandatory face mask rule and everyone is left to move around freely in a highly contaminated building as they keep moving patients back and forth. Worst hospital ever, avoid at all costs if you value your health

The nephrology section is simply one of the best in eastern europe. The doctors are emphathic, patient, always double checking and well organised. This is the only hospital in Romania i trust 100% and would deffinetly recommend over private care.

This hospital is amazing!! I arrived straight off my flight very sick and even though I don't speak Korean, the doctors worked fast to help me straight away and the nurses actually fly!! So blessed to have been a patient in the Inha University Hospital! A huge thank you to all the doctors, nurses and regular staff on the emergency ward! You are the BEST!!

Does not accept CignaGlobal outpatient insurance. Tried on numerous occasions to get me to pay direct. I had them flagged by my insurance company and they will be reviewed as to whether they will stay in-network or not. If you have outpatient global insurance, I would advise going to a hospital which accepts it immediately with no question asked.

I visited emergency section. Really attentive, caring and professional people working there. Everything was tracked and done on time. I could see that nurses were really tired because of high number of patients, but they stayed calm and tried not to let patient recognise it. Good hospital, recommended. Service deserves the price.